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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Dystonic cerebral palsy
This information is provided directly by researchers and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information.
Dystonic cerebral palsy is a condition that can include powerful spasms that cause the whole body to extend and straighten out. The spasms are called 'extensor spasms'. These spasms can result in pain, discomfort and poor posture. Comfort and posture may be able to be improved if the person's seating moves with them during a spasm. It is thought that present dynamic foot supports do not allow sufficient movement, so a new support has been designed. The new support was simulated in use with an adult with extensor spasms by a team of engineers and therapists, just using their hands. The adult reported that his pain was significantly reduced, that he had better head and hand control, and that he could eat and drink more easily. This study will provide the new support to three adults and three children, and evaluate their experiences of using the device for 4 weeks. We will measure how well it works using
questionnaires, interviews and some technology that measures the movements of the foot support. We will compare their experiences of sitting during extensor spasms with and without the new foot support.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
You can take part if:
You may not be able to take part if:
1. At risk of harm from the dynamic foot support, to be determined by the patient's own occupational or physiotherapist in consultation with the project team2. Concurrent medical interventions likely to cause changes in the extensor spasms during the course of the study3. Other medical conditions that may cause harm or distress to the participant as a result of using the foot support
(The reason for exclusion is so we do not contaminate our results or those of another study with another intervention)
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Dr
Tim
Adlam
+44 (0)1225 824 103
timadlam@designability.org.uk
The study is sponsored by Designability -– Bath Institute of Medical Engineering (UK) and funded by Posture and Mobility Group (UK) - Small Research Study Funding Scheme.
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
