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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Holly
Dodsworth
h.dodsworth4688@student.leedsbeckett.ac.uk
Holly
Dodsworth
h.dodsworth4688@student.leedsbeckett.ac.uk
Disorders of bone density and structureOrganic, including symptomatic, mental disorders
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Recent literature indicates that individuals with dementia, face an increased risk of developing osteoporosis. It is, therefore, highly likely that both dementia and osteoporosis frequently co-exist as long-term conditions among CH residents. Despite this, little research has focused on experiences of CH residents receiving and caregivers providing osteoporosis care to PLWD suggesting care could be improved in the UK.
Aims:
•To explore the experiences of, and care delivery to, CH residents with osteoporosis including residents with dementia, to identify and explore any differences in osteoporosis care for residents with dementia and any ways in which care could be improved.
•To explore the barriers and facilitators to providing high-quality, person-centred osteoporosis care, including, for those with dementia, in CH’s and to identify possible strategies for mitigating these challenges.
•To identify key areas and outcomes for future research interventions aimed at enhancing and improving person centred osteoporosis care in CHs with specific recommendations that address any unique needs for PLWD.
DESIGN:
An ethnographic study including observations, interviews and documentary analysis.
Stage 1:
Purposive sampling will be used to recruit an estimated 3-4 CHs. First, general observations and informal conversations of routine care patterns will take place for up to an estimated 2 weeks in each participating CH.
Stage 2:
Focused Ethnography (focused observations, informal conversations, interviews and documentary data collection) wherever possible will take place with an estimated 6–12 individuals living with osteoporosis, some of which will also have suspected / diagnosed comorbid dementia. 6–12 family members/supporters and 10–20 staff, from participating CHs.
OUTPUTS:
The study will produce recommendations for improving the care of people with osteoporosis and dementia in CHs, it will share findings through academic articles, lay summaries, conference presentations.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
Exclusion criteria CARE HOMES 1)Is rated CQC inadequate. RESIDENTS 1)Lacks capacity to give informed consent and has no-one willing/able to act as a consultee to provide advice on their wishes. 2)Is a respite or other temporary resident in a CH. 3)Is considered by the CH manager to be too unwell to participate or to have other ongoing personal circumstances that would make them unsuitable for participation to participate. STAFF 1)Member of bank staff (for interviews) FAMILY MEMBERS/SUPPORTERS 1)Is recently bereaved (in the last 3-months) 2)Has not visited the CH within the last 2 months 3)Lacks capacity to give informed consent
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Holly
Dodsworth
h.dodsworth4688@student.leedsbeckett.ac.uk
Holly
Dodsworth
h.dodsworth4688@student.leedsbeckett.ac.uk
The study is sponsored by LEEDS BECKETT UNIVERSITY and funded by NIHR School for Social Care Research .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 72203
You can print or share the study information with your GP/healthcare provider or contact the research team directly.