We'd like your feedback
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Chronic lower respiratory diseases
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
People referred to a hospital asthma service have persistent breathlessness despite treatment in primary care. Being short of breath is frightening and negatively impacts quality of life. We are running a research study (Asthma & Breath Mastery Learning Health System) to understand the causes of this breathlessness and how best to help people living with breathlessness to master it.
Typically, a healthcare professional (e.g. doctor) will have attributed the breathlessness to a medical condition called asthma. People might be given asthma drugs (treatments) to help improve their symptoms. However, for some people, these treatments do not make their symptoms any better. Some people also have breathlessness that is worse than expected given their clinical markers of asthma (e.g. blood results). This suggests there may be other factors causing their breathlessness.
One reason why people might have breathlessness that does not improve with asthma treatment is because the breathlessness is not entirely caused by asthma. Causes of breathlessness other than asthma may include breathing pattern changes, increased alarm symptoms associated with breath awareness, deconditioning, or other health conditions.
We are developing a learning health system to collect data to measure success of the Sheffield adult severe asthma service in helping people to master their breathlessness. We will use patient medical records to look at things like asthma treatments prescribed and symptoms of breathlessness. We will also ask people to complete questionnaires about their asthma/breathlessness, and physical and mental health, at different time points throughout the study. We want to develop and ultimately test an approach, using the learning health system, that helps people to master their breathlessness, whatever its cause.
People within the asthma service will be given the option to contribute their health data to future research studies. This could result in being offered new treatments or interventions. The data may be used as part of normal care and lead to changes in how the asthma team supports people living with breathlessness.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Cohort study;
You can take part if:
You may not be able to take part if:
1. Patients receiving palliative care and/or with a life expectancy of less than 1 year at screening. 2. Lacking in capacity to give informed consent.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
The study is sponsored by SHEFFIELD TEACHING HOSPITALS NHS FOUNDATION TRUST and funded by Medical Research Council (MRC) .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 69420
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
