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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Lorna
Fraser
lorna.fraser@kcl.ac.uk
Victoria
Fisher
victoria.4.fisher@kcl.ac.uk
Victoria
Fisher
victoria.4.fisher@kcl.ac.uk
Persons encountering health services for specific procedures and health care
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
Current evidence surrounding the experiences of ethnic minority parent-carers of children with a life-limiting condition is limited. We know that individuals from ethnic minority groups are more likely to report poorer health outcomes and poorer access to, and experiences of, healthcare but how such health inequalities may manifest in this parent-carer population is unknown. Similar inequalities in the delivery of palliative care have been shown, but we do not fully understand how this may be contributing to addressing or worsening inequalities for ethnically diverse children and families in the context of paediatric palliative care. This study will use qualitative methods to explore ethnic minority parent-carers experiences. Not only will this begin to address the dearth of evidence related to these families’ support needs, it will also begin to identify how policy and practice might be developed to ensure equity in access to any future interventions or support. Parents will take part in individual semi-structured interviews during which they will be asked about their experiences of providing care and accessing services for their child, their own health and support needs, as well as their preferences for support.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
• Those aged < 16 years • Those who lack capacity to participate in the study, guided by the 2005 Mental Health Capacity Act • Those recently bereaved (< 3 months) or those whose child is in end-of-life care
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Victoria
Fisher
victoria.4.fisher@kcl.ac.uk
Lorna
Fraser
lorna.fraser@kcl.ac.uk
Victoria
Fisher
victoria.4.fisher@kcl.ac.uk
The study is sponsored by King's College London and funded by NIHR Academy .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 69180
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
