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Be Part of Research - Trial Details - Polycystic Kidney Disease 1 (PKD1) Gene Variant Groups in Autosomal Dominant Polycystic Kidney Disease

Polycystic Kidney Disease 1 (PKD1) Gene Variant Groups in Autosomal Dominant Polycystic Kidney Disease

Not Recruiting

Open to: ALL

Age: 12.0 - 65.0

Medical Conditions

Autosomal Dominant Polycystic Kidney Disease (ADPKD)


This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


The purpose of this study is to estimate the prevalence, demographic, and clinical characteristics of PKD1/2 gene variant groups in the ADPKD population.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

Dec 2024 Dec 2026

OBSERVATIONAL



You can take part if:



You may not be able to take part if:


This is in the inclusion criteria above


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • King's College Hospital
    London
  • Northern General Hospital
    Sheffield
  • Queen Elizabeth Hospital Birmingham
    Birmingham
  • Royal Free NHS Trust
    London
  • St Georges University Hospitals NHS Foundation Trust
    London
  • Newcastle upon Tyne Hospitals NHS Foundation Trust - Freeman Hospital - Nephrology
    Newcastle upon Tyne


The study is sponsored by Vertex Pharmaceuticals Incorporated





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Read full details for Trial ID: NCT06747572
Last updated 10 February 2026

This page is to help you find out about a research study and if you may be able to take part

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