Ask to take part

Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.

Contact Information:

Prof Laura Coates
tailor@ndorms.ox.ac.uk


More information about this study, what is involved and how to take part can be found on the study website.

Study Location:

Find another location


Questions to ask
Skip to Main Content
English | Cymraeg
Be Part of Research - Trial Details - How does patient-initiated follow-up compare to standard care follow-up for people living with inflammatory arthritis?
Back

How does patient-initiated follow-up compare to standard care follow-up for people living with inflammatory arthritis?

Recruiting

Open to: All Genders

Age: Mixed

Edinburgh Cambridge Guildford Bath Reading Oxford Bristol Plymouth Nottingham York Sheffield London Leicester Milton Keynes Darlington Truro Bangor Exeter Belfast Warwick Northampton Carlisle Luton Portsmouth Oswestry Preston Birmingham Harrogate Glasgow Stornoway

Medical Conditions

Inflammatory arthritis

This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

21 Mar 2025 31 Jan 2026

Of those who agree to take part in the study, half will remain to have what is called standard care – this would mean that they would continue to come into the hospital approximately every 6-12 months to see their rheumatology care team, the other half will move to PIFU where they will not have any follow-up appointments made but instead be given a guide to PIFU and how to contact their care team if you need some advice or an appointment. Regardless of what treatment group they are assigned to, participants would come to the clinic for an appointment at the start of the study and again at 24 months. These visits would include a routine disease assessment and several questionnaires for completion. Participants will also be sent questionnaires at 1 week and 6, 12 and 18 months to complete at home. If participants agree, they may be invited to take part in 1-2 interviews during the study to help us understand their experience of PIFU.


Adults who have been diagnosed with inflammatory arthritis (rheumatoid arthritis, psoriatic arthritis, axial spondyloarthritis, undifferentiated arthritis) for at least 2 years and whose health care team consider their disease to be generally well-controlled. Patients that have ever been on PIFU for their inflammatory arthritis, would not be eligible to take part.

You can take part if:



You may not be able to take part if:


1. Currently or previously on PIFU for inflammatory arthritis 2. Safeguarding/consent/capacity concerns (using General Medical Council guidance)3. Health literacy concerns from the treating clinician related to inflammatory arthritis4. Women who are pregnant or planning to start a family5. Currently undergoing radiotherapy, immunotherapy or chemotherapy for malignancy6. Patients on end-of-life care pathways


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • NHS Lothian
    Waverley Gate 2-4 Waterloo Place
    Edinburgh
    EH1 3EG
  • Cambridge University Hospitals NHS Foundation Trust
    Cambridge Biomedical Campus Hills Road
    Cambridge
    CB2 0QQ
  • Royal Surrey County Hospital
    Egerton Road
    Guildford
    GU2 7XX
  • Royal United Hospitals Bath NHS Foundation Trust
    Combe Park
    Bath
    BA1 3NG
  • Royal Berkshire Hospital
    London Road
    Reading
    RG1 5AN
  • John Radcliffe Hospital
    Headley Way Headington
    Oxford
    OX3 9DU
  • University Hospitals Bristol and Weston NHS Foundation Trust
    Trust Headquarters Marlborough Street
    Bristol
    BS1 3NU
  • Derriford Hospital
    Derriford Road
    Plymouth
    PL6 8DH
  • Queens Medical Centre
    Derby Road
    Nottingham
    NG7 2UH
  • York Hospital
    Wigginton Road
    York
    YO31 8HE
  • Northern General Hospital
    Northern General Hospital NHS Trust C Floor, Huntsmnan Building Herries Road
    Sheffield
    S5 7AU
  • Kings College Hospital
    Denmark Hill
    London
    SE5 9RS
  • Leicester Royal Infirmary
    Infirmary Square
    Leicester
    LE1 5WW
  • Milton Keynes University Hospital NHS Foundation Trust
    Standing Way Eaglestone
    Milton Keynes
    MK6 5LD
  • Darlington Memorial Hospital
    Hollyhurst Road
    Darlington
    DL3 6HX
  • Royal Cornwall Hospital (treliske)
    Treliske
    Truro
    TR1 3LJ
  • Betsi Cadwaladr University Lhb
    Executive Offices, Ysbyty Gwynedd Penrhosgarnedd
    Bangor
    LL57 2PW
  • Royal Devon University Healthcare NHS Foundation Trust
    Royal Devon University NHS Ft Barrack Road
    Exeter
    EX2 5DW
  • Belfast City Hospital
    51 Lisburn Rd
    Belfast
    BT9 7AB
  • Warwick Hospital
    Lakin Road
    Warwick
    CV34 5BW
  • Northampton General Hospital
    Northampton General Hospital NHS Trust Cliftonville
    Northampton
    NN1 5BD
  • Cumberland Infirmary
    Newtown Road
    Carlisle
    CA2 7HY
  • Bedfordshire Hospitals NHS Foundation Trust
    Lewsey Road
    Luton
    LU4 0DZ
  • Queen Alexandra Hospital
    Southwick Hill Road Cosham
    Portsmouth
    PO6 3LY
  • The Robert Jones and Agnes Hunt Orthopaedic Hospital NHS Foundation Trust
    Gobowen
    Oswestry
    SY10 7AG
  • Lancashire & South Cumbria NHS Foundation Trust
    Sceptre Point Sceptre Way Bamber Bridge
    Preston
    PR5 6AW
  • City Hospital
    Dudley Road
    Birmingham
    B18 7QH
  • Harrogate & District NHS Foundation Trust
    Strayside Wing Harrogate District Hospital Lancaster Park Road
    Harrogate
    HG2 7SX
  • NHS Lanarkshire
    Kirklands Fallside Road Bothwell
    Glasgow
    G71 8BB
  • Western Isles
    37 South Beach
    Stornoway
    HS1 2BB

Participants may not directly benefit from taking part in this study but they will be making a significant contribution to research to help us to understand whether PIFU or standard care is better and which patients would benefit from PIFU. It is also hoped that study results will help to understand what PIFU costs the NHS compared to regular follow-up.

Prof Laura Coates
tailor@ndorms.ox.ac.uk



More information about this study, what is involved and how to take part can be found on the study website.


The study is sponsored by University of Oxford and funded by National Institute for Health and Care Research.




We'd like your feedback

Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.


Is this study information helpful?

What will you do next?
Read full details for Trial ID: ISRCTN10480648

Or CPMS 56645

Last updated 10 December 2025

This page is to help you find out about a research study and if you may be able to take part

You can print or share the study information with your GP/healthcare provider or contact the research team directly.   

Back to the top