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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Heather
Rostron
Heatherrostron@nhs.net
Heather
Rostron
h.rostron@leeds.ac.uk
Heather
Rostron
h.rostron@leeds.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
Inflammatory polyarthropathies
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
Children and young people (CYP) with problems with sore joints called Juvenile idiopathic Arthritis (JIA) or problems with their immune system (rheumatological issues) have a range of complaints, such as painful, stiff joints. These problems come and go and can stop CYP attending school. In adulthood, symptoms may affect what job they are able to do. CYP often need to take medications with severe side effects. CYP are usually watched closely to ensure that their medications are working and side effects are not too severe. CYP’s rheumatology teams therefore need to talk regularly with families.
Historically, CYP and their parents regularly attended outpatient departments, sometimes travelling long distances, and taking time off school and work. However, Technology Enabled Care (TEC) may be able to support some families just as well when they are cared for from home.
This study is important because the use of TEC was rushed into practice during Covid-19 with few studies to provide guidance. Lack of thorough research has resulted in varying practices across the UK.
The study aim is to investigate current practices, experiences, and views related to TEC adoption within CYP’s rheumatology UK services.
The study design will adopt a few approaches: an online survey to find out which healthcare technologies are being used, where, and how. Participants will be asked if they would like to take part in an interview or focus group to understand how their views on how TEC can be used to support and improve their care. All results will be brought together to fully address the aim.
Participants will complete an online survey then asked to provide contact details if they would like to take part in an interview or focus group.
The study is funded by the NIHR (Doctoral Fellowship 302999) and will be recruiting patients, parents, and staff across CYP's UK rheumatology departments.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
There are no specific exclusion criteria other than not being able to meet the above inclusion criteria.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Heather
Rostron
h.rostron@leeds.ac.uk
Heather
Rostron
Heatherrostron@nhs.net
Heather
Rostron
h.rostron@leeds.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by University of Leeds and funded by NIHR Academy .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 64743
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
