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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Dr
Deborah
Chinn
deborah.chinn@kcl.ac.uk
Dr
Deborah
Chinn
deborah.chinn@kcl.ac.uk
Dr
Deborah
Chinn
deborah.chinn@kcl.ac.uk
Disorders of psychological development
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Background: This project focuses on Shared Decision Making (SDM) between doctors and patients around prescribing psychotropic medication (medicines that are designed to impact mood and behaviour) for people with learning disabilities. The NHS STOMP (Stopping Over Medication of People with a learning disability) campaign was launched in 2016 in response to evidence that psychotropic medications are being prescribed unnecessarily and against clinical guidance, putting patients at risk of negative medicine side effects and worse health. The campaign recommends that patients with learning disabilities and their carers are fully involved in SDM about taking, reducing, or stopping their medication.
Aims and research plan: We want to help doctors talk about psychotropic medication with patients with learning disabilities and their carers in a way that means that they feel involved and decisions are made in a genuinely collaborative manner. We will first get an accurate picture of how decision-making works in this context by video recording and analysing real life medical consultations involving around 15 specialist learning disability NHS psychiatrists and pharmacists and their patients in community outpatient settings over a period of six months. We will share these findings with a group of people with learning disability, carers, clinicians and education experts. This group will co-design a resource with us to train doctors in how to involve patients and carers in discussions about psychotropic medication. We will share our design for the resource with groups of patients and clinicians to get their feedback.
Patient and public involvement: The proposal has been developed with our co-applicant who is a parent of a person with learning disabilities who has been prescribed psychotropic medication. People with learning disabilities and carers will be part of our project Advisory Group and will contribute to co-designing the training resource.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
Workstream 1 Other NHS staff who support people with learning around taking psychotropic medications Patients with learning disabilities receiving care and treatment in in-patient settings Patients with learning disabilities under the age of 18 Workstream 2 Psychiatrists who have not undertaken any further training or work experience in settings for people with learning disabilities People with learning disabilities who are not able to give informed consent to take part in research focus groups
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Dr
Deborah
Chinn
deborah.chinn@kcl.ac.uk
Dr
Deborah
Chinn
deborah.chinn@kcl.ac.uk
Dr
Deborah
Chinn
deborah.chinn@kcl.ac.uk
The study is sponsored by OXLEAS NHS FOUNDATION TRUST and funded by NIHR Central Commissioning Facility (CCF) .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 54525
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
