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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Charlotte
Kenten
c.kenten@qmul.ac.uk
Claudia
Cooper
claudia.cooper@qmul.ac.uk
Jessica
Budgett
j.budgett@qmul.ac.uk
Demyelinating diseases of the central nervous systemOrganic, including symptomatic, mental disorders
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
This study aims to undertake a comprehensive survey of dementia services to understand how these have developed over the last ten years and to consider whether these are ready to deliver new treatments for dementia, for example, Disease Modifying Treatments that may delay the progress of Alzheimer’s disease for some people as well as new investments in early detection of dementia, diagnostic and drug treatment facilities.
We will explore how Multiple Sclerosis services have changed over time to meet the needs of people who can or cannot use Disease Modifying Treatments. This will be used to inform future service design for people with Multiple Sclerosis and identify what dementia services need to consider when providing Disease Modifying Treatments.
We will explore how the organisation and provision of current services matches with the NHS Long Term Workforce Plan, which aims to improve patient care by keeping existing staff, recruiting more staff and a better use of technology. Alongside this we will consider the how care is integrated and enabling care to be provided at home as part of Integrated Care Boards, that were introduced in 2022.
Overall, the survey across secondary, primary and social care will help us to understand how community services interact to deliver care and help to identify gaps and learn from what works, as well as what does not. The interviews with people with people with dementia and those with Multiple Sclerosis will explore their experiences in accessing assessments and care, what they value in services and what should be a priority in future service design.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
• Unwilling or unable to give consent to be interviewed • The care recipient (or their personal consultee) refuses consent for the interview about them (with a family carer)
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Charlotte
Kenten
c.kenten@qmul.ac.uk
Jessica
Budgett
j.budgett@qmul.ac.uk
Claudia
Cooper
claudia.cooper@qmul.ac.uk
The study is sponsored by Queen Mary University of London and funded by NIHR Central Commissioning Facility (CCF) .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 60254
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
