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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Dr
Suzanne
Verstappen
suzanne.verstappen@manchester.ac.uk
Ash
Cox
ashley.cox@manchester.ac.uk
ArthrosisInflammatory polyarthropathiesSystemic connective tissue disorders
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
The overall aim of the JOURNEY study is to estimate the impact of Juvenile onset rheumatic and musculoskeletal diseases (jRMDs) in adolescents and young adults (AYA) on education, vocation, and employment, as well as the impact on their parents/carers. The study comprises of three work packages and will adopt a mixed methods approach. The first work package (WP1) is a quantitative study to evaluate the educational and socio-economic impact of jRMD on AYA aged 12- 30 years (WP1a) and to evaluate the socio-economic impact on parents/carers of AYA with jRMD (WP1b). WP2 is a qualitative study to examine trajectories of vocational development from the perspective of AYA with jRMDs and their parents/carers. The final work package (WP3) will be a face-2-face workshop to develop resources for relevant stakeholders. We now seek approval to conduct WP1 of the JOURNEY study. This work will then feed into further development of WP2 and finally WP3.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Cross-sectional;
You can take part if:
You may not be able to take part if:
WP1a Exclusion Criteria AYA with jRMD: • Refusal or inability to give consent/assent • Not able to communicate in English Exclusion Criteria comparison: • Refusal or inability to give consent/assent. • Not able to communicate in English. WP1b Exclusion Criteria parents and carers of AYA: • Refusal or inability to give consent. • Not able to communicate in English. • Not a parent, carer or partner of someone with a diagnosis of jRMD.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
The study is sponsored by University of Manchester and funded by THE NUFFIELD FOUNDATION .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 62003
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
