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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Rebeka
Jenkins
rebeka.jenkins@nhsbt.nhs.uk
Rebeka
Jenkins
rebeka.jenkins@nhsbt.nhs.uk
Rebeka
Jenkins
rebeka.jenkins@nhsbt.nhs.uk
Renal failure
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
This study represents the first phase of creating a Patient-Reported Experience Measure for kidney transplantation. These are sometimes called "PREM" for short. a PREM is a kind of survey that collects feedback from patients as a measure of the patient experience of healthcare. It gathers the patient’s perspective of their medical care, what happened, when, how, and how that felt about it. This study aims to develop and test a PREM for kidney transplantation with input from patients and healthcare professionals. Firstly, people who have had a kidney transplant within the last two years will be interviewed to explore their experience of transplant care (Part 1). These interviews will be analysed altogether to draw out themes. These themes will be used to write a draft PREM, with input from an expert panel of health care professionals, researchers, and patient and public contributors. The draft PREM will then be tested by asking kidney transplant patients to complete whilst voicing their thoughts in a second set of interviews (Part 2). Here, the PREM will be tested to see if it is easily understood, asks all the important things, and does not ask about things that are not relevant. Additionally, the PREM will be tested with a range of healthcare professionals who work in kidney transplantation in focus groups. Here they will check they think the questions are relevant and no important questions are missing. The feedback from both the patient and professional testing will be used to improve the PREM further. By the end of the study we aim to have a PREM ready for subsequent "real-world pilot" test in the next phase of research.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
Unable or unwilling to provide informed consent to participate Unable to understand, speak or read English
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Rebeka
Jenkins
rebeka.jenkins@nhsbt.nhs.uk
Rebeka
Jenkins
rebeka.jenkins@nhsbt.nhs.uk
Rebeka
Jenkins
rebeka.jenkins@nhsbt.nhs.uk
The study is sponsored by NHS BLOOD AND TRANSPLANT and funded by NHS BLOOD AND TRANSPLANT; NHS BLOOD AND TRANSPLANT; .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 60581
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