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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Klaudia
Kupiec
Klaudia.Kupiec@gosh.nhs.uk
Polly
Livermore
polly.livermore@ucl.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
Inflammatory polyarthropathies
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
Background
Paediatric Rheumatology is a term that covers over 80 conditions, affecting different parts of the body, such as Juvenile Arthritis. Children and young people (CYP) with rheumatological conditions can have high levels of mental health problems and therefore are at risk of poor health outcomes. We need to look at novel ways of providing early, essential support, to improve their current wellbeing.
Our aims
This study will create a digital-service that can guide parents through ways of supporting their CYP at home. This will be a chatbot that parents can have on their phone or on a website, which will offer education and advice. Our service will offer a different way of supporting parents, through coaching by role-play and practicing difficult conversations.
How to do it?
This is a co-designed study, which means that CYP with rheumatological conditions, parents, health-professionals and charities are involved in every step.
1. Asking important questions
We will gather information from parents and health-professionals on their views about what they think the assistant should help with. Most importantly, we will seek the views of CYP, especially what they wish their parents had known.
2. Being creative
We will then work with our patient and parent group to co-design the chatbot. This part of the study is vital to ensure that the views of those with rheumatological conditions are at the heart of this study. We will then ask parents to test the chatbot and make any changes they suggest, until we have a good end result.
What next?
We will work with our expert group, charities and health-professionals to share our findings and present at events, conferences and in journals. We will learn from any changes that need to be made, to improve the parent chatbot and ultimately make a similar chatbot for CYP.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Type: Education or Self-Management;Psychological & Behavioural;Management of Care;
You can take part if:
You may not be able to take part if:
Parents/carers: • A parent/carer of a child or young person without a rheumatological condition • Parents in the IMPACT study steering group Children and young people: • A child or young person without a rheumatological condition Health-professionals: • A health professional who does not work within rheumatology
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Klaudia
Kupiec
Klaudia.Kupiec@gosh.nhs.uk
Polly
Livermore
polly.livermore@ucl.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by GREAT ORMOND STREET HOSPITAL FOR CHILDREN NHS FOUNDATION TRUST and funded by NIHR Academy .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 57828
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
