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Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
James Bashford, MD
07876406551
james.bashford@kcl.ac.uk
Mark A Crook-Rumsey, PhD
+44(0) 7850255865
markcrook-rumsey@hotmail.co.uk
Motor Neuron Disease Amyotrophic Lateral Sclerosis Sclerosis
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
The goal of this observational study is the develop new ways of remotely monitoring the health and symptoms of people living with amyotrophic lateral sclerosis from within their homes. The main questions it aims to answer are:
* Can we integrate a new muscle monitoring device into Imperial College London's home monitoring platform?
* Can we investigate and understand the relationship between muscle activity and measure of patient behaviour (e.g., patient movement), physiology (e.g., pulse/blood pressure variation) and sleep quality from the home?
* Can we establish a home-based multimodal biomarker that tracks the neurodegenerative process in ALS? Participants will have passive internet-of-things sensors and internet-enabled medical devices installed in their homes for one year. Some sensors will record automatically without any interaction from the participants, but some will require participants to engage with daily (e.g., blood pressure monitor) on their own or with the help of a study partner.
Where possible, researchers will compare the collected data to other neurodegenerative diseases and healthy controls to understand differences over time.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
You can take part if:
You may not be able to take part if:
This is in the inclusion criteria above
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Mark A Crook-Rumsey, PhD
+44(0) 7850255865
markcrook-rumsey@hotmail.co.uk
James Bashford, MD
07876406551
james.bashford@kcl.ac.uk
The study is sponsored by King's College London and is in collaboration with Imperial College London; King's College Hospital NHS Trust.
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
