We'd like your feedback
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Tiffany Grider, MS
319-384-6362
Tiffany-Grider@uiowa.edu
Shawna M Feely, MS
319-384-6362
Shawna-Feely@uiowa.edu
Tooth Diseases Charcot-Marie-Tooth Disease Nerve Compression Syndromes Hereditary Sensory and Motor Neuropathy
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
The primary goal of this project is to develop and test a Charcot Marie Tooth disease (CMT) Pediatric Scale for use in evaluation in natural history CMT study.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
You can take part if:
You may not be able to take part if:
This is in the inclusion criteria above
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Tiffany Grider, MS
319-384-6362
Tiffany-Grider@uiowa.edu
Shawna M Feely, MS
319-384-6362
Shawna-Feely@uiowa.edu
The study is sponsored by University of Iowa and is in collaboration with National Institute of Neurological Disorders and Stroke (NINDS); Muscular Dystrophy Association; University of Rochester; Children's Hospital of Philadelphia; University College London Hospitals; Fondazione I.R.C.C.S. Istituto Neurologico Carlo Besta; Sydney Children's Hospitals Network; Nemours Children's Clinic.
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
You can print or share the study information with your GP/healthcare provider or contact the research team directly.