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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.

Contact Information:

I Obu 0207 679 6428
uclh.ttp@nhs.net


Study Location:

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Be Part of Research - Trial Details - The United Kingdom Thrombotic Thrombocytopenic Purpura Registry (UK TTP Registry)

The United Kingdom Thrombotic Thrombocytopenic Purpura Registry (UK TTP Registry)

Not Recruiting

Open to: ALL

Age: All

Medical Conditions

Purpura
Purpura, Thrombocytopenic
Purpura, Thrombotic Thrombocytopenic


This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


This is a UK (United Kingdom) based registry, involving all sites treating newly presenting Thrombotic Thrombocytopenic Purpura (TTP). From this registry, important epidemiological data will be obtained. Admission and remission samples will be collected. DNA will be collected and analysed from patients wishing to participate to determine if any link exists between mutations/polymorphisms and the risk of TTP. As part of NHS commissioning, we will be undertaking long term follow up, to understand the impact of acute TTP on morbidity and mortality.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

Jan 2009 Nov 2023

OBSERVATIONAL

Intervention Type : DIAGNOSTIC_TEST



You can take part if:



You may not be able to take part if:


This is in the inclusion criteria above


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • University College London Hospital
    London
    NW1 2PG


The study is sponsored by University College, London




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Read full details for Trial ID: NCT03832881
Last updated 05 February 2019

This page is to help you find out about a research study and if you may be able to take part

You can print or share the study information with your GP/healthcare provider or contact the research team directly.