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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.

Contact Information:

Natasha Seaton, MSc 0207 188 1189
LTC-study@kcl.ac.uk


Natasha Seaton, MSc 0207 188 1189
natasha.seaton@kcl.ac.uk


Study Location:

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Be Part of Research - Trial Details - The Living With a Long-Term Condition Study

The Living With a Long-Term Condition Study

Recruiting

Open to: ALL

Age: 18.0 - N/A

Medical Conditions

Spondylitis
Hidradenitis Suppurativa
Arthritis
Osteoporosis
Fibromyalgia
Cystic Fibrosis
Liver Diseases
Celiac Disease
Parkinson Disease
Multiple Sclerosis
Nervous System Diseases
Motor Neuron Disease
Amyotrophic Lateral Sclerosis
Cerebrovascular Disorders
Postural Orthostatic Tachycardia Syndrome
Endometriosis
Hypertension
Atrial Fibrillation
Heart Diseases
Tachycardia
Anemia, Sickle Cell
Hidradenitis


This information is provided directly by researchers and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information.


Psychological distress (anxiety and depression) is common in and experienced differently by people living with long-term health conditions (LTCs). Being able to measure whether psychological distress is related to living with a LTC would allow researchers and clinicians to provide interventions specifically tailored to the challenges of living with a LTC and therefore provide the most appropriate support for these patients. Such a measure would also be useful in research to identify the presence of illness-related distress in different patient groups. This project will therefore create a new measure of illness-related distress that has applications for both research and clinical practice. This will involve the psychometric validation of the new illness-related distress measure to test how valid and reliable the measure is.

The aim of the project is to provide initial validation of the Illness Related Distress Scale in a community sample, recruited through online platforms. The objective of the study is to gather initial validity and reliability data for the scale.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

Jun 2023 Dec 2023

OBSERVATIONAL

Intervention Type : DIAGNOSTIC_TEST
Intervention Description : A questionnaire that will ask about demographic information, mental wellbeing and distress related to chronic illness.

Intervention Arm Group : Participants;



You can take part if:



You may not be able to take part if:


This is in the inclusion criteria above


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • King's College London
    London
    SE1 9RT


The study is sponsored by King's College London




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Read full details for Trial ID: NCT06072287
Last updated 10 October 2023

This page is to help you find out about a research study and if you may be able to take part

You can print or share the study information with your GP/healthcare provider or contact the research team directly.