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English | Cymraeg
Be Part of Research - Trial Details - A Comprehensive Approach To Relief Of Digestive Symptoms In Cystic Fibrosis: CARDS-CF

A Comprehensive Approach To Relief Of Digestive Symptoms In Cystic Fibrosis: CARDS-CF

Completed

Open to: ALL

Age: 12.0 - N/A

Medical Conditions

Cystic Fibrosis
Digestive System Diseases
Gastrointestinal Diseases
Pancreatic Diseases
Lung Diseases
Respiratory Tract Diseases
Genetic Diseases, Inborn
Fibrosis


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Development of a new patient reported outcome measure (PROM) that will measure the daily burden of gastrointestinal symptoms over the previous 24 hour period for people with cystic fibrosis.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

Feb 2022 Dec 2023

OBSERVATIONAL

Intervention Type : OTHER
Intervention Description : Focus group to confirm PROM conceptual framework

Intervention Arm Group : People with CF age 12 years and over;

Intervention Type : OTHER
Intervention Description : Patient interviews to refine possible questions for the PROM

Intervention Arm Group : People with CF age 12 years and over;

Intervention Type : OTHER
Intervention Description : Online questionnaire to evaluate the proposed questions as part of PROM development in a larger population

Intervention Arm Group : People with CF age 12 years and over;

Intervention Type : DEVICE
Intervention Description : Daily testing of the pilot PROM in a smartphone app for 2 weeks

Intervention Arm Group : People with CF age 12 years and over;



You can take part if:



You may not be able to take part if:


This is in the inclusion criteria above


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • Nottingham University Hospitals NHS Trust
    Nottingham
    NG7 2UH


The study is sponsored by Nottingham University Hospitals NHS Trust and is in collaboration with The Leeds Teaching Hospitals NHS Trust; Manchester University NHS Foundation Trust; Royal Brompton & Harefield NHS Foundation Trust; King's College Hospital NHS Trust; Medizinische Hochschule Brandenburg Theodor Fontane.




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Read full details for Trial ID: NCT05251467
Last updated 18 July 2024

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