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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Christian
Farrier
christian.farrier@phc.ox.ac.uk
Christian
Farrier
christian.farrier@phc.ox.ac.uk
Other diseases of the digestive system
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
Coeliac Disease is a chronic condition involving an autoimmune response triggered by the presence of gluten, a dietary protein found in wheat, causing inflammation in the gastrointestinal tract. General practitioners (GPs) do not diagnose Coeliac Disease on a frequent basis, but it is sufficiently common in the population that GPs need to be able to recognise the signs and make decisions regarding screening, further testing and referral to ultimately make these diagnoses. At its onset, the symptoms of Coeliac Disease can be nonspecific and like symptoms in more common paediatric conditions, introducing a potential delay in diagnosis and initiation of appropriate treatment. This can be associated with worsening morbidity and long-term outcomes.
We will use interviews with both doctors and parents/caregivers to understand their experiences. Our goal is to understand how Coeliac Disease is currently diagnosed, when it goes well, when it is missed, and when the diagnosis is made late. For parents, we want to understand their lived experiences surrounding the diagnosis with Coeliac Disease and how these views and perspectives change in the months following receiving the diagnosis. The information from the interviews will help us to better understand where we can potentially help doctors in their decision making to diagnose Coeliac Disease as early as possible and to make that process as smooth as possible for families. It will also help us to know what information is helpful to share with families when Coeliac Disease is diagnosed.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
GPs and Parents/Caregivers will be excluded if they are not able to give consent (e.g. cognitive impairment; language barriers). Parents/Caregivers will be excluded for significant clinical reasons (e.g. if their child is on palliative care register).
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
The study is sponsored by University of Oxford and funded by NIHR School for Primary Care Research .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 58781
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
