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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Prof
Jane
Murphy
jmurphy@bournemouth.ac.uk
Gladys
Yinusa
yinusagg@bournemouth.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
Organic, including symptomatic, mental disorders
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Most people with dementia live at home supported by family or friends. Making sure people eat and drink well when they have dementia can be difficult,as dementia progresses. Many with dementia are therefore at risk of being undernourished. This can be caused by poor appetite as well as eating and swallowing problems. Being undernourished can lead to poorer health and quality of life for people with dementia (and their carers),more GP appointments and increased hospital admissions.
Discussions with people with dementia,family carers,health care professionals and home care staff showed that eating and drinking in dementia is an important issue and concerning for them. However,little research has been done in this area,particularly for people with dementia living at home. Compared with healthcare staff,home care workers provide care for people with dementia more frequently and for longer. Therefore,they have an important role in helping people with dementia and for their eating and drinking.
The aim of this project is to work together with home care staff,people with dementia and family carers to provide nutritional care for people living with dementia at home. The approach will be based on a nutrition intervention that we have developed for care homes which we think could be adapted for people with dementia who are receiving care at home. It includes a workbook and video,guides for staff and family carers,and resources and leaflets.
This study will take place in Southern,Midlands and Northern regions of England in two phases. The first phase involves adapting our existing nutrition intervention by getting feedback from people with dementia,family carers,home care staff and nutrition experts. In Phase 2 we will train home care workers to deliver the adapted approach to 32 people with dementia and family carers in receipt of care at home. We will gather information about food intake,weight,practicality and costs of the approach.
We will also interview people with dementia,family carers and home care managers to find out what they thought about the approach. This will help us to plan for carrying out a larger study to test the approach,if this early study is successful. We will regularly seek advice from dietitians,doctors,speech and language therapists,home care providers and home care workers during the study. A patient and public involvement group (family carers,people with dementia and home care workers) will provide input throughout the study (including project design,delivery,analysis,reporting and sharing of the findings).
We will share the research findings through the project website and patient and carer websites,articles in academic journals,newsletters,magazines,by blogs and social media posts,through relevant regional/national networks and conference presentations.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Interventional type: Management of Care;Other;
You can take part if:
You may not be able to take part if:
People with Dementia who 1) are at end of life or on an end-of-life care pathway. 2) are permanently cared for in bed. 3) do not have an informal caregiver. 4) are receiving specialist nutritional support e.g.,feeding via tube. Carers and Home Care Workers who 1) have not recently (in last 6-months) provided care for someone with dementia at risk of/experiencing malnutrition. 2) are not able to communicate fluently enough in English or provide informed consent.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Gladys
Yinusa
yinusagg@bournemouth.ac.uk
Prof
Jane
Murphy
jmurphy@bournemouth.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by Bournemouth University and funded by NIHR Central Commissioning Facility (CCF) .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 58676
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
