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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Dr
Samantha
Sodergren
s.c.sodergren@soton.ac.uk
Dr
Anne-Sophie
Darlington
a.darlington@soton.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
Malignant neoplasms of ill-defined, secondary and unspecified sites
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
This study addresses the specific Health-Related Quality of Life (HRQOL) concerns facing young survivors of cancer. The aim of the study is to produce a list of issues for young survivors of cancer looking at differences and similarities in survivors according to age at diagnosis and current age at study enrolment. A total of 160 young people diagnosed and successfully treated (at least 12 months earlier) as a child (childhood cancer survivor:CCS) or as an adolescent or young adult (childhood cancer survivor: AYACS) and 55 health care professionals (HCP) will be interviewed. The first part of the study is exploratory and asks HCPs to identify the issues experienced by young survivors of cancer they care for. Young survivors of cancer are also invited to share their experiences. A list of issues will then be written which will be informed by the HCP and young survivor interviews as well as existing research. The second part of the study involves a separate group of HCPS and young survivors reviewing this list of issues in terms of relevance (whether an issue is something which is likely to be experienced by young survivors) and importance (the extent to which this issue is troublesome and should be given attention to). The outcome of the study will be a set of issues as well as recommendations for the best way of measuring the HRQoL concerns of young people who have had cancer as a child or adolescent and young adult.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
Currently on active treatment for cancer. Age at study enrolment younger than 8 years and older than 49 years. Age at cancer diagnosis older than 39 years.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Dr
Anne-Sophie
Darlington
a.darlington@soton.ac.uk
Dr
Samantha
Sodergren
s.c.sodergren@soton.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by University of Southampton and funded by European Organisation for Research and Treatment of Cancer .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 58126
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
