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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Jennifer
Monkhouse
jennifer.monkhouse@canterbury.ac.uk
Susan
Holttum
sue.holttum@canterbury.ac.uk
Susan
Holttum
sue.holttum@canterbury.ac.uk
Schizophrenia, schizotypal and delusional disorders
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
Psychosis is a term for experiences such as hearing disturbing voices or extreme suspiciousness. There is increasing recognition that long-lasting stress and childhood experiences can play a role in causing psychosis. Research suggests it is helpful when services offer a range of therapies, involve people’s family or friends, and support people's life goals. However, precisely how this works is unclear, and not enough people have access to this type of service, especially ethnic minorities.
The National Institute for Health and Social Care is funding the project. We will use research and lived experience to explain how people draw on services, friends, family and other support to achieve their own definition of recovery. We will work with stakeholders (service providers, experts by experience and informal carers) to suggest how services can improve recovery across ethnicities, then plan service changes with stakeholders.
We will bring together research and stakeholder experience to produce explanations of how services enable recovery – ‘programme theories’. Whether a service works for a person can depend on circumstances. For example, if someone needs to feel safe to talk about past distressing experiences, this might only happen if service staff work with a trusted family member or understand their culture.
We will hold six stakeholder co-production workshops incorporating different geographical regions and ethnic groups. These will generate initial programme theories to help us focus on the right research. Later, 20 interviews will verify the final theories. We will work with stakeholders to design user-friendly findings-summaries for different audiences. We will also invite on-going stakeholder input via closed social media sites and email. We will plan service changes and follow-on research with stakeholders. We hope to see more people receiving the best help from early on and fewer people needing long term care.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
No direct experience of psychosis, or experiencing current distress at a level that would make participation very stressful, or incapacity to consent, or they are not and have never acted in an informal caring or supporting role to someone who has psychosis experiences.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Susan
Holttum
sue.holttum@canterbury.ac.uk
Susan
Holttum
sue.holttum@canterbury.ac.uk
Jennifer
Monkhouse
jennifer.monkhouse@canterbury.ac.uk
The study is sponsored by Canterbury Christ Church University and funded by NIHR Evaluation, Trials and Studies Co-ordinating Centre (NETSCC) .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 58091
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
