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Contact Information:

Rosie Satherley
r.satherley@surrey.ac.uk


Rosie Satherley
r.satherley@surrey.ac.uk


Rosie Satherley
r.satherley@surrey.ac.uk


Study Location:

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Be Part of Research - Trial Details - Supporting children and young people to live well with coeliac disease

Supporting children and young people to live well with coeliac disease

Completed

Open to: Female / Male

Age: 8 Years - N/A

Medical Conditions

Other diseases of intestines


This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


Management of a strict, gluten-free diet is essential for children and young people (CYP) with coeliac disease, but this can negatively impact psychological wellbeing and quality of life. Despite calls from families, clinicians and researchers, psychological support is not routinely available for these families. This is surprising, given the mounting evidence for self-help psychological resources (e.g. guided self-help books, websites) in supporting the self-management, and wellbeing, of a range of long-term conditions.

This project proposes to adapt existing psychological interventions, to be relevant and helpful for families living with coeliac disease. First, we will work with families and clinicians to adapt existing self-help interventions for coeliac disease. Next, we we will run a feasibility randomised controlled trial. This feasibility study will help us find out if we can run a larger project, how many parents we need to recruit and how long the larger project will last.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

02 May 2024 18 Dec 2024

Observational and Interventional

Type: Education or Self-Management;Psychological & Behavioural;



You can take part if:



You may not be able to take part if:


Families participating in another intervention-based research project will not be eligible Participant identified by clinical team as not appropriate (e.g. undergoing treatment for other complex difficulties)


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • St George's Hospital (tooting)
    Blackshaw Road
    London
    Greater London
    SW17 0QT
  • Bristol Royal Hospital For Children
    Upper Maudlin Street
    Bristol
    BS2 8BJ
  • Royal Surrey County Hospital
    Egerton Road
    Guildford
    Surrey
    GU2 7XX

Rosie Satherley
r.satherley@surrey.ac.uk


Rosie Satherley
r.satherley@surrey.ac.uk


Rosie Satherley
r.satherley@surrey.ac.uk



The study is sponsored by University of Surrey and funded by COELIAC UK .




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for Trial ID: CPMS 56838

Last updated 01 April 2025

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