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Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
LNW
Primary Care
lnw.primarycare@nihr.ac.uk
Jonathan
Gregory
j.gregory@imperial.ac.uk
Jonathan
Gregory
j.gregory@imperial.ac.uk
Dr
Matt
Williams
Matt.williams3@nhs.net
More information about this study, what is involved and how to take part can be found on the study website.
Malignant neoplasms of ill-defined, secondary and unspecified sites
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
We can use questionnaires to help us understand how a patient feels about their quality of life (QOL) and experiences of care. These surveys are called Patient-Reported Outcome Measures (PROMS).
PROMS have been used in research to understand patients quality of life. However, more needs to be done to understand the quality of life for patients in the long term following a diagnosis of cancer. To do this, we need to understand how to engage participants in this type of research so that we can deliver high volumes of PROMS responses. We will then be in a position to develop a greater understanding of quality of life in those living with and beyond cancer in the long term.
We also do not know what services patients use in the community to help them manage the long-term effects of their cancer or its treatment with the aim of improving their quality of life.
Using a digital survey tool, we hope we can run a project that will help us understand more about the lives of patients after treatment for cancer. We plan to see which PROM allow participants to express their quality of life as rated by the participants. We also want to study how we can keep the amount of time and effort needed to complete the questionnaires as low as possible.
All patients over the age of 16 who have had any type of cancer in the past can take part. Patients will access the survey at a time that suits them using a digital link. They can complete the survey once or if they chose, a second time 12 months later.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Cohort study;
You can take part if:
You may not be able to take part if:
EXCLUSION CRITERIA 1. Participants recently diagnosed with cancer (less than 12 months ago). 2. Participants unable to access secure online platform. 3. Participants who do not have sufficiently good understanding of written English to complete the PROMs and are unable to be supported by a trusted individual to complete the questionnaire. 4. Participants lacking capacity and unable to give informed consent.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
LNW
Primary Care
lnw.primarycare@nihr.ac.uk
Dr
Matt
Williams
Matt.williams3@nhs.net
Jonathan
Gregory
j.gregory@imperial.ac.uk
Jonathan
Gregory
j.gregory@imperial.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by Imperial College of Science, Technology and Medicine and funded by BRAIN TUMOUR RESEARCH CAMPAIGN .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 56060
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
