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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Laurna
Bullock
l.bullock@keele.ac.uk
Laurna
Bullock
l.bullock@keele.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
Disorders of bone density and structure
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Background
Osteoporosis is diagnosed by a bone density scan (also often referred to as a 'DXA' scan), which calculates how dense your bones are. Understanding your own bone density scan result is of critical importance in understanding your own risk of fracture and to inform decision-making about medicines. However, patients and clinicians report uncertainty about the purpose of bone density scans, difficulty understanding results (described using ‘T scores’, ‘Z scores’ and terms such as osteopenia), and clinicians report difficulty in being able to explain results. This uncertainty may reduce the chance of someone being prescribed, or deciding to take medicines that could help reduce their risk of a broken bone.
Aims
This research aims to:
1. understand what patients, primary care professionals (PCPs) and secondary care professionals (SCPs) think the purpose of bone density scans are, what their results mean, and how this affects their understanding and actions, using think aloud semi-structured interviews
2. use a stakeholder group to codevelop draft resources to improve communication and understanding of bone density scans and bone density results, which will be informed by recommendations made by participants in a group consensus meeting.
Methods
To address aim 1, we will conduct think aloud interviews to understand patients', PCPs and non-specialist SCPs experiences and views of bone density scans and bone density scan results. We will analyse the interview data using a framework method.
To address aim 2, we will conduct a group consensus meeting (using a Nominal Group Technique approach) with expert participants to develop key recommendations on how to improve communication and understanding of bone density scans and bone density scan reports. These recommendations will guide our stakeholder group meetings to create draft resources.
Our dedicated Osteoporosis Research User Group will meet regularly throughout the study, with patient and public members also attending stakeholder meetings.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
INTERVIEWS Patients: - Patients who have not received, or do not recall receiving a DXA result. - Patients who are unable to give full informed consent or unable to comply with study procedures. Healthcare professionals - Participants who are unable to give full informed consent or unable to comply with study procedures. NOMINAL GROUP TECHNIQUE - Participants who are unable to give full informed consent or unable to comply with study procedures.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Laurna
Bullock
l.bullock@keele.ac.uk
Laurna
Bullock
l.bullock@keele.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by University of Keele and funded by ROYAL OSTEOPOROSIS SOCIETY .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 56020
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
