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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.

Contact Information:

Miss Janey Sewell
j.sewell@ucl.ac.uk


Dr Alison Rodger
alison.rodger@ucl.ac.uk


More information about this study, what is involved and how to take part can be found on the study website.

Study Location:

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Be Part of Research - Trial Details - NICHE - a needs informed model of care for people living with HIV

NICHE - a needs informed model of care for people living with HIV

Completed

Open to: Female / Male

Age: 18 Years - N/A

Medical Conditions

Human immunodeficiency virus [HIV] disease


This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


Background:
Although HIV can be well controlled by treatment and not itself cause problems, many people living with HIV (PLWH) are affected by issues like depression, anxiety, stigma, or difficult financial or housing circumstances. This qualitative study is part of the formative work for the NICHE (Needs Informed model of Care for people living with HIV) programme of research. It aims to improve mental and physical wellbeing in PLWH, through developing and evaluating a needs-based model of care with a health coaching and social prescribing intervention.

Key research question:
(i) What are the current psychosocial needs and key drivers of poor mental health among PLWH, and can an intervention be co-developed with PLWH to improve wellbeing?


Design: (i) focus group discussions with people living with HIV to explore experiences of living with HIV, social, physical and mental health needs, and preferences around a health coaching intervention aimed at providing support for health and wellbeing. (ii) one to one interviews with key stakeholders such as health care workers to explore experiences of HIV and HIV services that shape interactions between PLWH and service providers; social, physical and mental health needs and factors that could promote or inhibit the implementation of a health coaching intervention.

This study will benefit patients and their clinical teams across the UK by providing a better understanding of the mental health and wellbeing needs in PLWH. Results from this study will be utilised in a Theory of Change workshop to refine the design of a health coaching intervention that will be tested in a randomised controlled trial (RCT). The RCT will aim to explore whether introducing a health coaching intervention into the model of care for PLWH can improve health and wellbeing, reduce inequalities and improve use of NHS resources.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

29 May 2023 11 Dec 2023

Observational

Observational type: Qualitative;



You can take part if:



You may not be able to take part if:


People under 18 years of age, without HIV. People without capacity to provide informed consent, or ability to speak English to a level that would allow the focus group or interview.


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • Royal Sussex County Hospital
    Eastern Road
    Brighton
    BN2 5BE

Miss Janey Sewell
j.sewell@ucl.ac.uk


Dr Alison Rodger
alison.rodger@ucl.ac.uk



More information about this study, what is involved and how to take part can be found on the study website.


The study is sponsored by University College London and funded by NIHR Central Commissioning Facility (CCF) .




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for Trial ID: CPMS 55442

Last updated 25 April 2025

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