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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Catriona
Mayland
c.r.mayland@sheffield.ac.uk
Sarah
Birchall
sarah.birchall4@nhs.net
More information about this study, what is involved and how to take part can be found on the study website.
Malignant neoplasms of lip, oral cavity and pharynx
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
Why does this research matter?
We aim to improve experiences of patients with incurable head and neck cancer (IHNC) by finding out the most pressing issues for them and developing solutions to improve these.
Patients with IHNC have many complex needs and the level of support they require is often greater than other illnesses. IHNC symptoms cause major changes to basic functions, such as: being unable to talk; severe swallowing problems with a high choking risk; breathing difficulties requiring a hole in the neck (tracheostomy). The manner of death can be highly traumatic and frightening e.g. catastrophic bleeding from the neck. Despite this poor outlook, little is known about patients’ needs in the last year of life. However, IHNC patients have more emergency hospital visits compared with other cancer groups. Patients from poorer areas are more likely to die in hospital. Furthermore, head and neck cancer (HNC) units are centralised, with access to specialist services dependent on where you live.
We need to understand ‘stress points’ in the patients' journey, where things do not go as planned, identify priorities for change and develop patient-led solutions.
How will we do this?
There are two main parts to our work, occurring over 21-months across Yorkshire, Northwest and Northeast England.
1. A series of up to three interviews with approximately 25 IHNC patients and their families, along with group discussions with healthcare workers involved in IHNC care. These will explore how patients’ needs and use of healthcare change over time.
2. Using interview and group discussion findings, we will hold a series of workshops with patients, families, clinical service leaders, and healthcare workers. We will identify priorities and develop ways to improve care experiences.
The research is funded by the National Institute for Health Research (NIHR) Research for Patient Benefit programme.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
INTERVIEWS WITH PATIENTS AND CARERS • Unable to provide fully informed written consent FOCUS GROUPS WITH HEALTHCARE PROFESSIONALS • Unable to provide informed consent • Unable to participate in an online focus group, when required.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Sarah
Birchall
sarah.birchall4@nhs.net
Catriona
Mayland
c.r.mayland@sheffield.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by SHEFFIELD TEACHING HOSPITALS NHS FOUNDATION TRUST and funded by NIHR Central Commissioning Facility (CCF) .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 54906
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
