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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Dr
Anna
De Simoni
a.desimoni@qmul.ac.uk
Georgios
Karampatakis
g.karampatakis@qmul.ac.uk
Chronic lower respiratory diseases
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• What are the stakeholders’ preferences for an intervention promoting engagement in an asthma Online Health Community (OHC)?
• Is the intervention acceptable/feasible and can we recruit patients to a trial testing it?
Approximately 4.3 patients have asthma in the UK, with one-third experiencing poor asthma control which negatively affects mortality, healthcare use, costs and patients’ psychology. Interventions focusing on self-management, by fostering behavioural and emotional well-being, can enhance asthma control and minimise co-morbidities. The National Health Services (NHS), however, has limited resources to widely promote self-management.
OHCs are becoming increasingly popular amongst patients, with millions accessing information posted by peers (other patients). Online peer support likely improves self-management of conditions and health-related outcomes. Our aim with this project, therefore, is to design an intervention based on a consultation by primary care clinicians encouraging participation in an asthma OHC and verify feasibility of conducting additional research to evaluate the intervention’s usefulness. The project consists of three studies:
• Discussion groups with patients, general practitioners, and practice nurses to co-design the intervention’s content.
• A survey exploring the profile of people likely to welcome digital interventions for asthma.
• A feasibility study, in which a sample of patients from the survey will undergo a one-off, face-to-face intervention, and subsequent engagement with an asthma OHC for six months, and recruitment, uptake and retention will be assessed.
Participants will be recruited from North and East London general practices. Participating patients will be adults on the asthma register, only patients with troublesome asthma will be invited to the feasibility study.
The project is funded by the National Institute for Health and Care Research and will complete within 20 months from commencement. Findings will enhance patients’ ability to cope with asthma, inform initiatives to build a digital NHS, and assist the conduction of a large trial to refine the intervention.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Type: Psychological & Behavioural;
You can take part if:
You may not be able to take part if:
For the focus group and the survey study: -Palliative or end of life patients. -Patients receiving institutional long-term care (receiving total care in residential homes or living in nursing homes). -Patients considered unsuitable to take part in the study by their GP/nurses. For the feasibility study: - Patients who are already members of the Asthma + Lung UK OHC or other asthma OHCs/ Facebook groups (i.e. general use of social media will not prevent participation). - Patients considered unsuitable to take part in the study by their GP/nurses.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
The study is sponsored by Queen Mary University of London and funded by NIHR Central Commissioning Facility (CCF) .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 53927
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