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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Jenni
Naisby
jenni.naisby@northumbria.ac.uk
Katherine
Baker
katherine.baker@northumbria.ac.uk
Katherine
Baker
katherine.baker@northumbria.ac.uk
Extrapyramidal and movement disorders
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Pain in people with Parkinson’s (PwP) is common – reported by up to 85% of PwP, which can have a negative impact on a person’s movement, mood and quality of life. However, pain in PwP is often overlooked by healthcare professionals (half of PwP report receiving no treatment for pain). Furthermore, there are few quality research studies on how best to support PwP to manage their pain. Therefore, there is a pressing need for research to better understand the lived experience of pain from the perspective of PwP, in particular the wider impact that pain has on PwP, whether it changes over time and the relationship between pain and symptoms of Parkinson’s. A better understanding of pain from the perspective of PwP would help to develop better support for PwP to help with reducing the negative impact of pain on their day-to-day lives. Up to 30 PwP from NHS Parkinson's services will be invited to take part in one-to-one interviews (two interviews, up to an hour) over an 18 month time period. The interviews will aim to understand what it is like to live with Parkinson’s and pain, and whether their pain changes over time. Using a structured questionnaire, their views will also be sought on what types of things might prevent (barriers) and encourage (enablers) PwP to accessing pain management interventions. Participants will be recruited from three Parkinson’s NHS services. Interviews can be face-to-face, online or telephone (depending on the preference of the participant). We will aim to recruit a diverse group of PwP (different stages of the condition, age, sex and geographical location). The findings from the interviews will enable us to design a pain management intervention and healthcare professional training that is informed by the lived experience of PwP.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
Patient has features indicating another type of degenerative parkinsonism, e.g. progressive supranuclear palsy Evidence of significant cognitive impairment
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Jenni
Naisby
jenni.naisby@northumbria.ac.uk
Katherine
Baker
katherine.baker@northumbria.ac.uk
Katherine
Baker
katherine.baker@northumbria.ac.uk
The study is sponsored by University of Northumbria at Newcastle and funded by MEDICAL RESEARCH FOUNDATION .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 53579
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
