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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Mrs
Anna
Price
a.price@exeter.ac.uk
Mrs
Anna
Price
a.price@exeter.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
Behavioural and emotional disorders with onset usually occurring in childhood and adolescence
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Background:
Attention deficit hyperactivity disorder (ADHD) is the most common childhood neurodevelopmental disorder. It affects around 5% of children and adolescents, and up to 40% continue to experience symptoms into adulthood. Primary care practitioners (e.g., general practitioners (GPs), nurses, link workers, clinical pharmacists) play an important role in the healthcare of young people (YP) with ADHD, particularly due to long waiting times in adult mental health services, and patchy provision of specialist services. However, many practitioners feel unsure about how to support YP at this vulnerable stage in their lives. They report concerns about prescribing ADHD medication and a desire for more guidance. Currently, little is known about how YP with ADHD are supported in primary care, the strengths and weakness of existing care pathways, and how care can be improved.
Aims:
To provide an evidence-base by mapping current services, and co-produce guidance to improve and better co-ordinate primary care for YP aged 16-25 with ADHD.
Methods:
Three interlinked studies. A mapping study including a national survey of stakeholders to map patient pathways, prescribing practice, shared-care arrangements, and practitioner roles. A qualitative study including semi-structured interviews with YP and practitioners, to gain insight into experiences of ‘what works’ and ‘what is needed’. Workshops to co-develop a map of patient pathways, key messages, and clinical guidance.
Patient Involvement:
This research has been developed in response to identified gaps in services, and requests from people with ADHD. The team includes young people with ADHD whose input will help ensure the research is sensitive and relevant, and an academic GP to ensure identified solutions are deliverable within primary care settings.
Impact:
The expected impact of this research is improvement of the quality and experience of care for YP with ADHD. Also, to improve experiences of primary care providers facing difficulties managing ADHD.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
Exclusion criteria, vary slightly between work packages. For details please see below. WP1 Survey Exclusion criteria • Does not identify as a person aged 16 or over with lived experience of ADHD, a health professional, or a commissioner/provider of NHS health services • Not currently resident, working, or studying in England WP2 Qualitative Exclusion criteria • Not a young person aged 16-25 with lived experience of ADHD (or a parent/carer), a health professional, or commissioner/provider of health services • Not currently resident or working in England • Not currently resident, working, or studying close to one of the qualitative study sites identified following WP1, where ‘close to’ means located within the same geographic locality (to be decided based on findings from WP1) WP3 Co-production Exclusion criteria • Not a young person aged 16-25 with lived experience of ADHD (or a parent/carer), a health professional, commissioner/provider of NHS health services, or a member of the MAP study research team • Not currently resident, working, or studying in England • Not willing and able to work collaboratively and engage in consultations to co-produce evidence-based guidance for improving the co-ordination of primary care for young people with ADHD
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Mrs
Anna
Price
a.price@exeter.ac.uk
Mrs
Anna
Price
a.price@exeter.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by University of Exeter and funded by NIHR School for Primary Care Research .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 53215
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
