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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Extrapyramidal and movement disordersSymptoms and signs involving speech and voice
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This project will develop and test a personalised speech and language therapy programme for people living with Parkinson’s. The therapy will be delivered remotely in partnership with an NHS service already specialising in telehealth. Up to 70% of people living with Parkinson's experience speech and voice changes. Not being understood or being able to join in can lead to frustration, stress/anxiety, social isolation and wider relationship problems.
Our new therapy is called Better Conversations with Dysarthria - Parkinson's (BCD-P), and currently involves six weekly 1-hour sessions with a speech therapist. It will be delivered remotely via a computer. It works to support everyday communication between a person with Parkinson’s and their key communication partner (a 'dyad'). BCD-P is personalised to a dyad’s own communication strengths and challenges. This involves using video feedback. A dyad will make video recordings of themselves talking to each-other. These are used by the therapist to explain how communication works, and understand what is problematic for them and why. Practical communication goals will be agreed. These goals will be addressed through a combination of activities and feedback. Participants will commit to completing therapy sessions and assessment sessions before and after therapy to measure outcomes. Participants will be fully supported to use the technology and to talk about their own communication. We are experienced in this approach and will ensure there is time for emotional support.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Type: Education or Self-Management;Psychological & Behavioural;Rehabilitation;
You can take part if:
You may not be able to take part if:
- Have a history of brain lesions or major head trauma - Have major physical illness or disability which could impact on participation - Present with a major psychiatric diagnosis - Present with prominent behavioural disturbance - Present with prominent episodic memory, visual memory or visuoperceptual impairments - Currently participating in active SLT intervention which may conflict with BCD-P - Currently participating or recently participated in research which may conflict with BCD-P - Have no access to Wi-Fi connection in order to be able to access BCD-P remotely
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
The study is sponsored by University College London and funded by PARKINSON'S DISEASE SOCIETY OF THE UNITED KINGDOM .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 52750
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
