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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Paul
Brown
Paul.Brown@lthtr.nhs.uk
Christian
De Goede
christian.degoede@lthtr.nhs.uk
Christian
De Goede
christian.degoede@lthtr.nhs.uk
Diseases of myoneural junction and muscle
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The quality of life in young males with Duchenne muscular dystrophy (DMD) is negatively impacted by daily pain, changes in body composition and a lack of support to undertake physical activity. Hydrotherapy represents a potential means of involving boys and adolescents with DMD in activity that could benefit the negative factors influencing their quality of life. We seek support to complete two project goals:
1) to allocate a clinical physiotherapist to a project implementing hydrotherapy in young males with DMD to establish whether there are meaningful benefits to their daily life.
2) to conduct patient and parent interviews to understand the barriers to completing a hydrotherapy intervention and ensure our future research addresses meaningful outcomes for those with DMD.
There are presently no guidelines or evidence for the benefits of hydrotherapy with the standards of care for young males with DMD. We are looking to provide evidence that will allow care providers to advocate the use of hydrotherapy within the management of DMD, as an inclusive activity, that can be adopted by those with DMD who are either ambulatory, or non-ambulatory. Through 12-weeks of hydrotherapy, we want to investigate whether there are benefits to lung function, muscle function, body composition, bodily pain and ultimately quality of life. These measures represent meaningful outcomes in the progression of DMD, and have direct patient impact for those affected by DMD.
On completion of the hydrotherapy, we will conduct interviews with some of the participants and their parents. The aim of these interviews is to understand participant and parent barriers to hydrotherapy, and uncover whether hydrotherapy improves the lives of the participants beyond simple clinical measures and questionaires.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Type: Physical;
You can take part if:
You may not be able to take part if:
•Younger than 6 years, older than 25 years •Recent change in steroid dose, less than 3 months prior •Undertaking formal hydrotherapy supervised by physiotherapist on a regular basis (weekly or more frequent)
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Paul
Brown
Paul.Brown@lthtr.nhs.uk
Christian
De Goede
christian.degoede@lthtr.nhs.uk
Christian
De Goede
christian.degoede@lthtr.nhs.uk
The study is sponsored by LANCASHIRE TEACHING HOSPITALS NHS FOUNDATION TRUST and funded by DUCHENNE UK .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 51800
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
