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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.

Contact Information:

Dr Emily Ross
e.ross@sheffield.ac.uk


Dr Emily Ross
e.ross@sheffield.ac.uk


SCS ResearchWPH
sth.specialisedcancerresearchadministration@nhs.net


Study Location:

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Be Part of Research - Trial Details - Experiences of gestational trophoblastic disease

Experiences of gestational trophoblastic disease

Completed

Open to: Female / Male

Age: 18 Years - N/A

Medical Conditions

Neoplasms of uncertain or unknown behaviour


This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


Gestational trophoblastic disease (GTD) is a rare condition that can arise following conception, causing abnormal cells to develop within the womb. In some cases this leads to a tumour. GTD can mean that though a woman may receive a positive test and experience pregnancy symptoms, she might not be carrying a baby. Some women require chemotherapy, and all must must have their hormone levels monitored for a specific amount of time. GTD poses questions about what it means to be pregnant, and challenges how we understand cancer.
Experiences of GTD are poorly understood because it’s rare, but also because it can be difficult for women and their families to talk about the condition. This research will use a sociological approach to find out more about how women make sense of GTD, and how it impacts their lives and futures. Interviews will be conducted with women focusing on loss, treatment and follow-up to better understand their needs. Interviews and observations with healthcare professionals will shed light on how the condition is discussed with patients in the clinic, and how the rarity of GTD impacts care and treatment. More broadly, the research will consider how the way society perceives pregnancy and cancer might shape understandings of GTD and care. Findings will be shared with clinicians and other stakeholders, such as charities, throughout the project. The research will help clinicians and charities better understand patient experiences, and will raise awareness of the condition.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

21 Jul 2021 31 May 2024

Observational

Observational type: Qualitative;



You can take part if:



You may not be able to take part if:


• Those for whom participation has been deemed inappropriate by GTD staff members e.g. due to distress • Those who cannot consent to their participation • Those under 18


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.


The study is sponsored by SHEFFIELD TEACHING HOSPITALS NHS FOUNDATION TRUST and funded by Wellcome Trust .




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for Trial ID: CPMS 48818

Last updated 21 November 2024

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