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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Systemic atrophies primarily affecting the central nervous system
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Currently, people with motor neuron disease (PwMND) and their carers find it difficult to get to clinical appointments because the specialist nature of this healthcare provision means that they may live far away from hospitals with MND care centres. Also, these appointments are usually once every 2 or 3 months and little information is available to healthcare workers during the months in between. To overcome these issues, we have developed a technology system to allow more communication between PwMND, their carers, and healthcare professionals (HCPs). This system is called ‘Telehealth in Motor Neuron Disease’, or ‘TiM’ for short and has already started to be delivered as a standard service in the Sheffield MND care centre. We have already conducted some research on this system, finding positive results and highlighting other areas that need to be developed further.
The current study is the second in a programme of research which aims to build upon our earlier work and further test and develop the TiM platform. We will analyse data that has already been collected during the running of the service, such as the number of people who create a TiM account and the number of clinical questionnaires they complete. We will also invite PwMND, carers, and HCPs to complete research questionnaires and participate in interviews, which aim to understand if people are satisfied with the service they are receiving and whether they have seen an improvement in the level of their care.
Through analysing the data collected as part of the service, research questionnaires, and interviews, we will be able to evaluate whether the use of TiM is linked with better care for PwMND and their carers. This information can also be used to help us develop the service further.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Cohort study;
You can take part if:
You may not be able to take part if:
People with MND: • Unable to talk over a telephone or use video-conferencing software (interviews only).
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
The study is sponsored by University of Sheffield and funded by MND Scotland .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 48577
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
