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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
RICHARD
ASPINALL
richard.aspinall@porthosp.nhs.uk
Benjamin
Giles
benjamin.giles@porthosp.nhs.uk
Congenital malformations of the urinary systemOther congenital malformations of the digestive system
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
The Polycystic Liver Disease (PLD) registry will be part of an international, multicentre, observational registry. All patients with Polycystic Kidney Disease (PKD) with PLD or patients with Isolated (without PKD) Polycystic Liver Disease are eligible for inclusion (for both > 10 liver cysts).
Data will be collected prospectively and retrospectively including a specific PLD questionnaire.
This registry provides us insight in patient characteristics, risk factors, symptoms, quality of life and treatment strategies in the biggest international PLD cohort so far. Results of this registry will be published and shared at national and international congresses.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Cohort study;
You can take part if:
You may not be able to take part if:
Patients with PKD or PLD with less than 10 liver cysts
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
The study is sponsored by PORTSMOUTH HOSPITALS UNIVERSITY NHS TRUST and funded by European Association for the Study of the Liver .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 47137
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
