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Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Emma
Murphy
Emma.Murphy@uhcw.nhs.uk
Emma
Murphy
Qualycarestudyoffice@uhcw.nhs.uk
Manreet
Thind
Qualycarestudyoffice@uhcw.nhs.uk
Renal failure
This information is provided directly by researchers and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information.
Dialysis is an invasive treatment, and, for some patients it may bring burden without corresponding benefit, neither increasing survival nor improving quality of life. Some patients reach a stage when they consider that dialysis can no longer provide them with any benefit and they may choose to stop dialysis. Sometimes, the medical team may advise that dialysis treatment is no longer beneficial and should end.
We do know that people who withdraw from dialysis generally survive for one to two weeks. However, we do not know what drives the person to make the decision to stop, equally we do not know why some patients do not withdraw and die whilst on dialysis.
We wish to explore this from the views of family members and to compare what patients and families prefer with what they actually experience. Our study aims to examine variations in the care, costs, preferences and outcomes associated with a dialysis withdrawal death or death on dialysis (non-withdrawal).
We plan to survey 400 bereaved relatives of dialysis patients who died in 14 UK renal units. The clinical teams identify potential participants and invite them, via post and on our behalf, to participate in the survey. Letters will be sent 4 to 14 months after the patients died. Participation will involve self-completing a postal questionnaire.
We will use a robust and validated questionnaire to assess bereaved relatives’ views on the care received in the three months before their relative died. This has previously been used in a large UK study of bereaved relatives of people who died from cancer. The study will advance the understanding of the costs and the consequences (i.e. outcomes to patients and families) of dying following dialysis withdrawal and non-withdrawal. It will help improve future care for dialysis patients and their families.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Cohort study;
You can take part if:
You may not be able to take part if:
• No next of kin recorded
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Emma
Murphy
Qualycarestudyoffice@uhcw.nhs.uk
Manreet
Thind
Qualycarestudyoffice@uhcw.nhs.uk
Emma
Murphy
Emma.Murphy@uhcw.nhs.uk
The study is sponsored by UNIVERSITY HOSPITALS COVENTRY AND WARWICKSHIRE NHS TRUST and funded by NIHR Academy .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 41781
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
