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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Dr
Leah
Mc Laughlin
l.mclaughlin@bangor.ac.uk
Dr
gareth
roberts
Gareth.Roberts7@wales.nhs.uk
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
Kidney disease is common, affecting up to 1 in 10 of the adult population, and the numbers are expected to rise over
the next decade, driven by the increase in diabetes and obesity. Three main treatments are available to patients with
kidney disease: transplantation, dialysis and supportive care without dialysis. Dialysis can occur in a dialysis unit
(UHD) or in a patient’s home. Renal units across Wales have introduced pre-dialysis education (PDE) programmes to
engage patients in shared decision making about the available types of treatment. However, UHD remains the
commonest start treatment option for patients across Wales. This is a cause for concern as most studies suggest that
UHD is associated with the lowest quality of life and the highest mortality. It is also the most expensive treatment.
This study aims to identify the factors that lead to patients choosing unit-based haemodialysis rather than other
options with a view to informing future changes in patient education and service commissioning.
There are five strands to the study.
1. The principles of co-production mean that in this study NHS staff, patients, carers and other organisations are
working with academics to undertake research that can help improve services.
2. We will be analysing current patient education programmes and decision-making procedures followed by the five
NHS renal centres in Wales.
3. We will link renal patient data with other health and administrative data to identify factors that may be linked to
patient choice.
4. We will undertake an analysis to better understand the economics of current and alternative models of renal service
provision.
5. We will interview patients, unpaid carers, and the clinicians that are involved in the delivery of dialysis options to gain
a better understanding of the factors that influence treatment choices.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
Patient and Carer Interviews A participant will be ineligible to participate if they; • are judged by key renal team members to be too unwell or lack capacity to participate • do not want to participate • are incapable of giving consent for themselves • outside of the age range • live outside of Wales Professional Interviews Professionals will be ineligible to participate if they; • are not involved in discussing dialysis options with patients working in the renal units across Wales • are unwilling to participate
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
The study is sponsored by CARDIFF & VALE UNIVERSITY LHB and funded by Health and Care Research Wales .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 41351
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
