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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.

Contact Information:

Ms Jenni McCorkell
jenni.mccorkell@uhs.nhs.uk


Dr Sarah Ennis
se@soton.ac.uk


Dr James Ashton
j.ashton@soton.ac.uk


Dr Sarah Ennis
se@soton.ac.uk


Study Location:

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Be Part of Research - Trial Details - Genetics of Paediatric Inflammatory Bowel Disease

Genetics of Paediatric Inflammatory Bowel Disease

Recruiting

Open to: Female / Male

Age: All

Medical Conditions

Noninfective enteritis and colitis


This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


This study is currently going through retrospective adoption to the CRN portfolio and the information on this R&D formd relates to the initial pilot phase of the study which in 2009 was ineligible for portfolio status due to funding constraints. Following the success of the pilot phase, a cohort has been established and the project has been awarded funding from CICRA thus enabling retrospective adoption. As the cohort has now been established and the project evolved, a substantial amendment is in preparation to reflect the maturing research goals. Claire Eckert (NIHR Portfolio Team, Leeds), Karen Matthews (CSPU, London) and Prof. Sir John Burn (Chair of the NIHR Genetics Specialty Group) are all appraised of this project's current status.

This study sets out to collect a cohort of children with inflammatory bowel disease. For each patient we aim to collect detailed clinical information including details of treatments and follow up. We will collect blood samples that will allow both genetic and serum analyses. Where possible we will also recruit family members and record their clinical information. Analysis of the types and degree of genetic variation between those affected by IBD and those not will allow us to assess the role of genetic variants in this disease and outcomes of treatment.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

20 Oct 2010 28 Feb 2028

Observational

Observational type: Case-controlled study;



You can take part if:



You may not be able to take part if:


(Recent substantial amendment removed lower age limit of 5 years).


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • Southampton General Hospital
    Tremona Road
    Southampton
    Hampshire
    SO16 6YD

Dr Sarah Ennis
se@soton.ac.uk


Dr James Ashton
j.ashton@soton.ac.uk


Dr Sarah Ennis
se@soton.ac.uk


Ms Jenni McCorkell
jenni.mccorkell@uhs.nhs.uk



The study is sponsored by UNIVERSITY HOSPITAL SOUTHAMPTON NHS FOUNDATION TRUST and funded by CROHN'S IN CHILDHOOD RESEARCH ASSOCIATION; UNIVERSITY HOSPITAL SOUTHAMPTON NHS FOUNDATION TRUST; .




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for Trial ID: CPMS 11158

Last updated 19 February 2025

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