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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Mrs
Hannah
Rossington
+44 (0)113 3430337
H.L.Rossington@leeds.ac.uk
Prof
Phil
Quirke
+44 (0)113 3438408
p.quirke@leeds.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
Colorectal cancer
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
Bowel cancer affects 3,300 people a year within Yorkshire and the Humber. Over the next five years over 6,000 people in Yorkshire and the Humber will die of bowel cancer. This study wants to greatly reduce this number, decrease the number of deaths and improve the patients’ experience of their care. The management of bowel cancer and outcomes for patients across Yorkshire and the Humber differs. This study wants to understand why there is a difference and then improve outcomes by addressing these issues. The study will use data collected during the diagnosis and treatment of patients with bowel cancer in the NHS. This data has been linked together by the National Cancer Registration and Analysis Service (NCRAS) and provides basic information about bowel cancer care across the region. This study will improve this information by consenting patients and collecting new data via patient reported outcome measures (PROMS) and will also collect additional data from radiology and pathology to improve the data that is held. The study team will analyse this data to find areas that can be improved and work with the clinical teams to provide educational events and improvements. The study team will assess the differences made to the care and outcome of bowel cancer patients across the region. The overall aim of this programme of work is to work out how much bowel cancer outcomes can be improved by working with bowel cancer multidisciplinary teams (MDTs), collecting and feeding back to them high quality information and providing training and supervision for specialists where a need is found.
The primary aims of the study are:
1. To develop high quality cancer information to evaluate the outcomes for patients with bowel cancer across Yorkshire and the Humber
2. To describe the quality of life of newly diagnosed bowel cancer patients close to the time of diagnosis. This will provide a starting point to measure differences in quality of life across Yorkshire and Humber.
3. To explore the issues that may be able to predict the quality of life of patients 12 months after diagnosis.
4. To collect tissue for testing to show whether certain chemotherapy drugs can be used to improve outcomes.
5. To support the introduction of NICE recommended Lynch testing in the region. Lynch Syndrome is an inherited disorder that increases the risk of many types of cancer, particularly bowel cancer.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
2019 Protocol article in http://dx.doi.org/10.1136/bmjopen-2019-030618 protocol (added 16/09/2020)
You can take part if:
You may not be able to take part if:
1. Patients under 18 years of age2. Patients with a diagnosis of anal cancer (ICD-10 code C21)3. Patients who are not-resident within Yorkshire and the Humber study region and who have not been diagnosed and managed by one of the sixteen bowel cancer MDTs who participating in the study4. In addition for the prospective cohort aspects will exclude patient who lacks the capacity to give informed consent (this may be due, for example, to psychopathology, cognitive dysfunction or learning difficulties)
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Prof
Phil
Quirke
+44 (0)113 3438408
p.quirke@leeds.ac.uk
Mrs
Hannah
Rossington
+44 (0)113 3430337
H.L.Rossington@leeds.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by University of Leeds and funded by Yorkshire Cancer Research; Grant Codes: L394.
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Or CPMS 35830
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
