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Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Prof
Moin
Saleem
m.saleem@bristol.ac.uk
Susan
Pywell
susan.pywell@ukkidney.org
Prof
Moin
Saleem
m.saleem@bristol.ac.uk
Glomerular diseasesOther diseases of urinary system
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
RaDaR provides an infrastructure to capture both generic and disease-specific clinical information and to collate longitudinal information. Patients and clinicians can view information about the conditions covered by RaDaR on RareRenal.org, which links closely with RaDaR.
RaDaR was set up following an initiative of the Medical Research Council (2008) to develop cohorts of wellcategorized patients for translational research. RaDaR is a development of the Renal Association and is operated by the UK Renal Registry (UKRR). The governance structure is described below. RaDaR is web-based and data is held on a secure server. Data entry is overseen by the clinician with responsibility for the patient - usually their nephrologist. Data from RaDaR will be made available to researchers investigating specific rare diseases in accordance with the operating policy and the RA Data Sharing Policy enforced by the Rare Disease Committee in collaboration and operated by UKRR employees. (see below). RaDaR is predominately aimed at UK patients; however international recruits who are consented in the UK by an NHS hospital are also eligible, subject to local approval.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Cohort study;
You can take part if:
You may not be able to take part if:
N/A
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Susan
Pywell
susan.pywell@ukkidney.org
Prof
Moin
Saleem
m.saleem@bristol.ac.uk
Prof
Moin
Saleem
m.saleem@bristol.ac.uk
The study is sponsored by University of Bristol and funded by KIDNEY RESEARCH UK .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 6726
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
