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Contact Information:

Dr David Orr
+44 (0)1273 678167
d.orr@sussex.ac.uk


More information about this study, what is involved and how to take part can be found on the study website.

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Be Part of Research - Trial Details - Improving collaborative interagency practice in self-neglect
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Improving collaborative interagency practice in self-neglect

Not Recruiting

Open to: All Genders

Age: Adult

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Medical Conditions

Health services research

This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


Self-neglect covers a range of behaviours and situations where someone is put at risk by not caring for their health, safety or surroundings. Self-neglect can have serious consequences, from deteriorating health and wellbeing, or even death for some, or unwanted intrusion and surveillance for others. Support to address self-neglect often requires collaboration between many practitioners, from Adult Social Care, Health, Fire & Rescue, Environmental Protection and other organisations. Yet reviews highlight repeated failings in working together. These arise where care and support have not been coordinated, where different organisations have not had a joint understanding of the situation, or where existing systems have not enabled joint working. At the same time, there is much to learn from effective collaborative practice which may go unremarked.
What little research exists on joint working in self-neglect has overwhelmingly focused on social work perspectives. This study aims to engage with a broader range of practitioners to identify what problems arise in inter-agency and interprofessional practice with self-neglect, and how to address them, in order to improve care and support for people experiencing self-neglect.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

10 Feb 2023 13 Dec 2024

Publications

2023 Other publications in https://doi.org/10.1108/JAP-11-2022-0027 Mapping and review of self-neglect policies and procedures from safeguarding adults boards in England (added 25/03/2024)

The research team will search existing research, multi-agency procedures and published case inquiries for evidence on factors influencing collaborative working. The team will then conduct interviews with 75-100 practitioners and managers from relevant agencies and with 15-20 people who have experienced self-neglect. The interviews will focus on how organisations collaborated to intervene with self-neglect, and what factors helped or hindered.
The research team will then hold three focus groups with up to practitioners to help the research team turn the findings into usable solutions and resources for services. The team will assess the initial impact of these recommendations using an online practitioner survey and follow-up interviews.


1. Practitioners and managers in health, social care, fire & rescue, environmental health, housing, and related fields, who have experience through their roles of supporting people with self-neglect
2. Individuals aged over 18 years, with whom practitioners in the above organisations have worked together due to concerns about self-neglect; carers or family members of these participants

You can take part if:



You may not be able to take part if:


Exclusion criteria for practitioners/managers (interviews, focus groups):1. Does not work within a partner organisation of one of the participating Safeguarding Adults Boards 2. Has little or no direct professional experience of collaborative working with self-neglect

Exclusion criteria for practitioners (interviews to evaluate resources, training, guidance produced by the study): 1. Is not aware of or has not encountered the resources, training and/or guidance produced by the study

Exclusion criteria for people experiencing self-neglect (interviews):1. Has never had interagency involvement with partner organisations of one of the participating Safeguarding Adults Boards due to concerns about self-neglect2. Aged under 18 years3. Lacks mental capacity to give informed consent to participation in the study 4. In the judgement of the practitioner (from any partner organisation), invitation to participate in the study risks jeopardising safeguarding or engagement with support services


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • Publicly listing these sites would potentially compromise the anonymity of study participants because of the details captured in qualitative data, so this information should be withheld.
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There will be no immediate benefit to participants. Participants may contribute to the improvement of service support for people experiencing self-neglect, which is potentially of benefit to practitioners working in them and to others who experience self-neglect in the future. The main risk of participating is that some experiences discussed in the interview may be distressing.

Dr David Orr
+44 (0)1273 678167
d.orr@sussex.ac.uk



More information about this study, what is involved and how to take part can be found on the study website.


The study is sponsored by University of Sussex and funded by NIHR Evaluation, Trials and Studies Co-ordinating Centre (NETSCC); Grant Codes: NIHR133885.



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Read full details for Trial ID: ISRCTN16282284

Or CPMS 54015

Last updated 27 January 2025

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