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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.

Contact Information:

Prof Will Mandy
+44 20 7679 1897
w.mandy@ucl.ac.uk


Dr Kate Cooper
-
k.r.cooper@ucl.ac.uk


Ms Annabel Burnley
-
ab3535@bath.ac.uk


More information about this study, what is involved and how to take part can be found on the study website.

Study Location:

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Be Part of Research - Trial Details - Autism Transition to Adulthood Groups (ATAG)
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Autism Transition to Adulthood Groups (ATAG)

Not Recruiting

Open to: All Genders

Age: Adult

Bath London

Medical Conditions

Autism spectrum conditions

This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


Our project will improve understanding of how social care professionals can enhance the life chances of autistic people without intellectual disability. We will conduct a feasibility study to learn if it is realistic and possible to conduct a research project testing a new intervention. This group intervention will support autistic people in a successful transition to adulthood.

Over the next 10 years, in the UK ~175,000 autistic people will engage in transition to adulthood. This is a challenging time, as they face the demands of adult life while support decreases.

This research aims to understand how possible it is to find 70 people who agree to take part, and if they are willing to continue taking part in the study. It will tell us if it is possible to do a bigger study to see if the intervention is effective.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

01 Jul 2023 10 Jun 2024

Publications

2024 Protocol article in https://pubmed.ncbi.nlm.nih.gov/39566950/ (added 02/12/2024)

Participants will be randomly allocated to receive usual care, or the new group intervention. Thirty-five people will receive the new intervention.

The intervention is being developed by young autistic adults and autism professionals. It involves six online group sessions, facilitated by an autistic young adult and two social care professionals. It will cover different topics including understanding the autism label, identifying your needs and understanding your rights, and where to get help. Carers, nominated by each participant, will also be offered online resources to learn about these topics.

Participants will complete questionnaires measuring well-being, interpersonal support, autism social identity, loneliness, and quality of life before the intervention starts, and after 3- and 12- months. We will also invite participants to be interviewed to find out their views on the intervention and taking part in the study.

Autistic people are involved in the research project. The intervention and research has been designed in collaboration with a group of autistic people.


We will recruit 70 autistic people aged 16-25 years old to take part in the study.

You can take part if:



You may not be able to take part if:


Current exclusion criteria as of 10/06/2024:1. Risk of suicide 2. Risk of harm to others3. Have attended autism psychoeducation or post-diagnostic support from a professional over the past 12 months4. English, non-English & Welsh literacy levels such that the intervention materials are inaccessible without reasonable adjustments and a supporting person is not available

Previous exclusion criteria:1. Risk of suicide 2. Risk of harm to others3. Have attended >6 sessions of autism psychoeducation or post-diagnostic support over the past 6 months 4. English, non-English & Welsh literacy levels such that the intervention materials are inaccessible without reasonable adjustments and a supporting person is not available


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • University of Bath
    Claverton Down
    Bath
    BA2 7AY
  • Tavistock and Portman NHS Foundation Trust
    The Tavistock Centre 120 Belsize Lane
    London
    NW3 5BA

Participants may find that taking part improves their well-being, but there is no guarantee of this. They may also benefit from the extra contact that comes with being part of the study. Even if there is no direct benefit from taking part in this study, participants will help to improve future support for autistic young people.
In terms of risks, participants may find it tiring to complete the questionnaires. We will try to ensure participants are comfortable and can take one or more breaks as needed. Participants might find that some of the topics covered are distressing, for example talking about challenges. We will help participants to get further support if needed.

Dr Kate Cooper
-
k.r.cooper@ucl.ac.uk


Prof Will Mandy
+44 20 7679 1897
w.mandy@ucl.ac.uk


Ms Annabel Burnley
-
ab3535@bath.ac.uk



More information about this study, what is involved and how to take part can be found on the study website.


The study is sponsored by University of Bath and funded by NIHR Central Commissioning Facility (CCF).



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Read full details for Trial ID: ISRCTN10513626

Or CPMS 55812

Last updated 02 December 2024

This page is to help you find out about a research study and if you may be able to take part

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