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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.

Contact Information:

Prof Brendan Delaney
-
brendan.delaney@imperial.ac.uk


Dr Manoj Sivan
+44 (0)113 3922564
M.Sivan@leeds.ac.uk


More information about this study, what is involved and how to take part can be found on the study website.

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Be Part of Research - Trial Details - LOCOMOTION: Can we optimise the treatments and services provided across the NHS for long COVID?
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LOCOMOTION: Can we optimise the treatments and services provided across the NHS for long COVID?

Not Recruiting

Open to: All Genders

Age: Adult

Leicester Newcastle upon Tyne Cardiff Salford Salford Leicester London Inverness Leeds Oxford Birmingham Oxford Welwyn Garden City

Medical Conditions

COVID-19 (SARS-CoV-2 infection)

This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


Around one million people in the UK are affected by Long Covid (LC). LC severely impacts people’s daily life. There are 83 LC clinics in England, but waiting times are long and access is delayed for many people. There is increasing urgency for LC patients to access prompt, appropriate and efficient care in clinics and doctors’ surgeries.

The aim of this study is to produce a ‘gold standard’ for care by analysing what is happening to patients now, creating new systems of care and evaluating them to establish best practice. This research takes place in 10 UK-wide LC clinics treating 5000 patients and involves three parallel workstreams (WS1, WS2 and WS3). Working with health professionals and people with LC, we found that the key priorities are correct clinical assessment; advice and treatment; and help with returning to work and other roles.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

05 Jan 2022 30 Jun 2024

Publications

2022 Protocol article in https://pubmed.ncbi.nlm.nih.gov/35580970/ (added 18/05/2022)2023 Protocol article in https://pubmed.ncbi.nlm.nih.gov/37553189/ (added 09/08/2023)2024 Results article in https://pubmed.ncbi.nlm.nih.gov/38616276/ (added 15/04/2024)

Workstream (WS) 1 involves the close cooperation between health professionals and researchers from the ten clinics. Using their combined experiences and various research methods, they will codesign with patients the best possible approaches that will inform training and resources to address the care and vocational challenges facing patients.

WS2 involves developing precise methods for measuring symptoms and difficulties with daily living, and identifying triggers for these difficulties. This includes the wearing of digital devices and further development and testing of the first published LC patient-reported outcome measure (C19 YRS Yorkshire Rehabilitation Scale).

WS3 will use existing data from care of LC patients and the best practice guidance developed in WS1 to develop and evaluate new service models.

By comparing findings of these workstreams across our ten LC Clinics, we will establish a ‘gold standard’ of treatment and real-time education for healthcare staff and patients that can be shared within England and the rest of the UK.

The research will take place in three settings: LC clinics; at home (including self-monitoring on a mobile device using a set of questions on symptoms built into an app); and in doctors’ surgeries. We will track where patients are being referred or not referred and learn from the experience of clinics by interviewing patients and recording outcomes. Throughout, specialists in ‘Healthcare Inequality’ will reach people who are not accessing clinics. We will put in place new processes in clinics and doctors’ surgeries, monitored throughout to ensure they are the correct standard, accessible for patients and staff, and cost-effective.


Healthcare professionals and patients aged over 18 years, with experience of long COVID.

You can take part if:



You may not be able to take part if:


Task 1.1. Potential participants with no experiences of long covid healthcare provision will be excluded and will not be eligible to take part in this phase of the LOCOMOTION study. Task 1.21. Potential participants with no experiences of long covid healthcare provision will be excluded and will not be eligible to take part in this phase of the LOCOMOTION study. 2. Patients without capacity to consent for themselves will not be eligible for this phase of the LOCOMOTION study. 3. Patients under the age of 18 will not be eligible to take part in this phase of the LOCOMOTION study. Task 1.3. Patients who are unable to consent and those under the age of 18 will not be eligible to participate in qualitative interviews. Patients currently receiving care and rehabilitation from a Long Covid clinic will also be excluded.Task 1.4. Patients who are unable to consent and under the age of 18. Patients will be excluded from Phase 2 of the study if they have not completed the LOCOMOTION Vocational Rehabilitation program. Task 2.1. Participants will be excluded who are under 18 years old, unable to attend the rehabilitation Centre, unable to use the ecological momentary assessment App technology or use the wearable technology, are pregnant, have a known previous diagnosis of dementia or cognitive impairment preventing participation in the use of the EMA or wearable technologies, or are unable to understand the language used in the EMA. Task 2.2. Inability to independently complete electronic or paper-based outcome measures, questionnaires or other research-based paperwork, and those patients who are unable to give Informed Consent.


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • Glenfield Hospital
    Groby Road
    Leicester
    LE3 9QP
  • Freeman Hospital
    Freeman Road High Heaton
    Newcastle upon Tyne
    NE7 7DN
  • Cardiff & Vale University Lhb
    Woodland House Maes-y-coed Road
    Cardiff
    CF14 4HH
  • Salford Royal
    Stott Lane
    Salford
    M6 8HD
  • Northern Care Alliance NHS Foundation Trust
    Salford Royal Stott Lane
    Salford
    M6 8HD
  • Leicester Royal Infirmary
    Infirmary Square
    Leicester
    LE1 5WW
  • Imperial College Healthcare NHS Trust
    The Bays St Marys Hospital South Wharf Road
    London
    W2 1BL
  • NHS Highland
    Reay House 17 Old Edinburgh Road
    Inverness
    IV2 3HG
  • Leeds Community Healthcare NHS Trust
    Stockdale House 8 Victoria Road
    Leeds
    LS6 1PF
  • Warneford Hospital
    Warneford Lane Headington
    Oxford
    OX3 7JX
  • Birmingham Community Healthcare NHS Foundation Trust
    3 Priestley Wharf Holt Street Birmingham Science Park, Aston
    Birmingham
    B7 4BN
  • Oxford University Hospitals NHS Foundation Trust
    Second Floor, Ouh Cowley Unipart House Business Centre Garsington Road
    Oxford
    OX4 2PG
  • Hertfordshire Community NHS Trust
    Unit 1a Howard Court 14 Tewin Road
    Welwyn Garden City
    AL7 1BW

None

Dr Manoj Sivan
+44 (0)113 3922564
M.Sivan@leeds.ac.uk


Prof Brendan Delaney
-
brendan.delaney@imperial.ac.uk



More information about this study, what is involved and how to take part can be found on the study website.


The study is sponsored by University of Leeds and funded by National Institute for Health Research; UK Research and Innovation.



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Read full details for Trial ID: ISRCTN15022307

Or CPMS 51044

Last updated 15 April 2024

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