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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Greg
Forshaw
greg.forshaw@york.ac.uk
Lisa
Ballantine
lisa.ballantine@york.nhs.uk
Sara
Ma
s.ma@yorksj.ac.uk
Sara
Ma
s.ma@yorksj.ac.uk
Noninfective enteritis and colitisPersons encountering health services in circumstances related to reproduction
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
This research aims to develop an intervention to help nurses improve the assessment and care of the sexual health needs of men with Inflammatory Bowel Disease (IBD). This is a long-term digestive condition that is often diagnosed between the ages of 15-30 years. Patients often have bloody diarrhoea, abdominal pain, incontinence, and fatigue. When severe, the disease can lead to hospital admission and surgery. There is growing recognition that IBD can negatively affect sexual health and impact on patients' relationships and quality of life, but men’s needs have been neglected in research. Men report that their sexual health is rarely discussed at NHS IBD clinic appointments, and specialist information and support are lacking. In this study we will work with patients, their partners, nurses, and other healthcare professionals to develop a nursing intervention that addresses this unmet need through information, assessment, and support.
This study consists of three main parts which have been labelled workstreams. In Workstream One we will identify how the sexual health of men with IBD is currently assessed and cared for in the NHS using three large scale surveys that will include; (1) NHS Trusts (2) Nurses (3) People with IBD.
In Workstream Two we will gather ideas on appropriate ways to improve the healthcare of men with IBD by conducting interviews with men with IBD and partners of men with IBD. We will also conduct focus groups with healthcare professionals to hear their ideas of how services can be improved.
In Workstream Three we will hold a series of workshops with patients and healthcare professionals to develop an intervention and consider how and why it could help patients.
The design of the study has been developed with a patient advisory group and input from IBD health professionals.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Qualitative;
You can take part if:
You may not be able to take part if:
Unable to provide informed consent. Less than 18 years old. Does not speak English. Not able to participate in the research activity
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Lisa
Ballantine
lisa.ballantine@york.nhs.uk
Greg
Forshaw
greg.forshaw@york.ac.uk
Sara
Ma
s.ma@yorksj.ac.uk
Sara
Ma
s.ma@yorksj.ac.uk
The study is sponsored by YORK AND SCARBOROUGH TEACHING HOSPITALS NHS FOUNDATION TRUST and funded by NIHR Central Commissioning Facility (CCF) .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 58565
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
