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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Prof
Sube
Banerjee
s.banerjee@bsms.ac.uk
Natalie
Portwine
Natalie.Portwine@sussexpartnership.nhs.uk
Prof
Sube
Banerjee
s.banerjee@bsms.ac.uk
Other degenerative diseases of the nervous systemOrganic, including symptomatic, mental disorders
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Dementia is one of the most common and serious disorders we face with over 800,000 affected in the UK, costing £23billion annually. Negative impacts on those with dementia and their families are profound. Evidence has emerged of major inequalities in care for dementia driven by factors including: ethnicity, whether your care is self-funded or paid for by local authorities, and whether you are diagnosed earlier or later. DETERMIND is designed to address critical, fundamental, and as yet unanswered questions about inequalities, outcomes and costs following diagnosis with dementia. These answers are needed to improve the quality of care, and therefore the quality of life, of those with dementia and their carers.
Our overall aim is to explore and understand inequalities in dementia care and what drives good and bad quality of life, outcomes and costs for people with dementia and their carers following diagnosis. We do this to identify things that we can change to improve outcomes for them. We will investigate how outcomes and costs vary by content and time of diagnosis, individual circumstances, and with varying health and social care. To do this we have designed a programme of research with 7 complementary workstreams (WS):
WS1: Recruitment and follow-up of the DETERMIND cohort - We will recruit 900 people with dementia and their carers in the 6 months following diagnosis and follow them up closely for 3 years obtaining high quality data on service use, costs and outcomes including quality of life.
WS2: Inequalities in use of dementia care
WS3: Relationship between use and costs of services and outcomes
WS4: Experience of self-funders of care
WS5: Understanding decision-making by people with dementia and carers
WS6: Effect of diagnostic stage and services on outcomes
WS7: Programme management and guided research development, coordination and promotion of impact
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Cohort study;
You can take part if:
You may not be able to take part if:
People with dementia who lack capacity will be excluded if we are unable to identify an appropriate personal or nominated consultee.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Natalie
Portwine
Natalie.Portwine@sussexpartnership.nhs.uk
Prof
Sube
Banerjee
s.banerjee@bsms.ac.uk
Prof
Sube
Banerjee
s.banerjee@bsms.ac.uk
The study is sponsored by University of Nottingham and funded by Economic and Social Research Council (ESRC) .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 41721
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