Ask to take part

Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.

Contact Information:

Matilda Fenn
ion.pdresearch@ucl.ac.uk


Prof Huw Morris
h.morris@ucl.ac.uk


Simona Jasaityte
ion.pdresearch@ucl.ac.uk


Study Location:

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Be Part of Research - Trial Details - Parkinson's Families Project (PFP)

Parkinson's Families Project (PFP)

Medical Conditions

Extrapyramidal and movement disorders


This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.


One person in every 500 has Parkinson’s and around 127,000 people are living with the condition in the UK. The aim of the study is to identify new genes that predispose or cause Parkinson's Disease or Parkinsonism. There is a pressing need to study the genetic makeup of family members both with and without Parkinson's. As families share a common genetic background, it is easier to find new Parkinson's genes by studying the genetic makeup of people with Parkinson's alongside other members of their families. We are particularly interested in studying the genetic makeup of two groups of people:
1) those who developed Parkinson's before the age of 45; and
2) those who have a family history of other relatives affected by Parkinson's.
By identifying genetic factors that cause Parkinson's, we hope to understand more about the condition. Doing so will lead to the development of better diagnosis, improved disease models, and we hope in time, to the development of better treatment.

Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.  

The recruitment start and end dates are as follows:

30 Mar 2015 01 Mar 2030

Observational

Observational type: Genetic epidemiology;



You can take part if:



You may not be able to take part if:


Lack of capacity to consent to participate in project.


Below are the locations for where you can take part in the trial. Please note that not all sites may be open.

  • Airedale General Hospital
    Skipton Road
    steeton
    Keighley
    West Yorkshire
    BD20 6TD
  • Queen's Hospital
    Rom Valley Way
    Romford
    Essex
    RM7 0AG
  • Harrogate District Hospital
    Lancaster Park Road
    Harrogate
    North Yorkshire
    HG2 7SX
  • King's College Hospital (denmark Hill)
    Denmark Hill
    London
    Greater London
    SE5 9RS
  • Luton & Dunstable Hospital
    Lewsey Road
    Luton
    Bedfordshire
    LU4 0DZ
  • Norfolk & Norwich University Hospital
    Colney Lane
    colney
    Norwich
    Norfolk
    NR4 7UY
  • Royal Cornwall Hospital (treliske)
    Treliske
    Truro
    Cornwall
    TR1 3LJ
  • Royal Devon & Exeter Hospital (wonford)
    Barrack Road
    Exeter
    Devon
    EX2 5DW
  • Royal Free Hospital
    Pond Street
    London
    Greater London
    NW3 2QG
  • Salisbury District Hospital
    Odstock Road
    Salisbury
    Wiltshire
    SP2 8BJ
  • Musgrove Park Hospital
    Musgrove Park
    Taunton
    TA1 5DA
  • Greenfields Day Centre
    West Bow House
    milton Place
    Bridgwater
    Somerset
    TA6 3RT
  • Yeovil District Hospital
    Yeovil District Hospital
    higher Kingston
    Yeovil
    BA21 4AT
  • Hillingdon Hospital
    Pield Heath Road
    Uxbridge
    Middlesex
    UB8 3NN
  • New Cross Hospital
    Wolverhampton Road
    heath Town
    Wolverhampton
    West Midlands
    WV10 0QP
  • University Hospital (coventry)
    Clifford Bridge Road
    Coventry
    West Midlands
    CV2 2DX
  • Yeovil District Hospital
    Higher Kingston
    Yeovil
    Somerset
    BA21 4AT
  • St Mary's Hospital
    Parkhurst Road
    Newport
    Isle Of Wight
    PO30 5TG
  • FAIRFIELD GENERAL HOSPITAL
    RW601@2.16.840.1.113883.2.1.3.2.4.18.48
  • Leicester Royal Infirmary
    Infirmary Square
    Leicester
    Leicestershire
    LE1 5WW
  • Scarborough General Hospital
    Woodlands Drive
    Scarborough
    North Yorkshire
    YO12 6QL
  • Hammersmith Hospital
    Du Cane Road
    London
    Greater London
    W12 0HS
  • Charing Cross Hospital
    Fulham Palace Road
    London
    Greater London
    W6 8RF
  • Basingstoke And North Hampshire Hospital
    Aldermaston Road
    Basingstoke
    Hampshire
    RG24 9NA
  • North Tyneside General Hospital
    Rake Lane
    North Shields
    Tyne And Wear
    NE29 8NH
  • Basildon Hospital
    Nethermayne
    Basildon
    Essex
    SS16 5NL
  • Poole Hospital
    Longfleet Road
    Poole
    BH15 2JB
  • Christchurch Hospital
    Fairmile Road
    Christchurch
    BH23 2JX
  • The James Cook University Hospital
    Marton Road
    Middlesbrough
    Cleveland
    TS4 3BW
  • Royal Hallamshire Hospital
    Glossop Road
    Sheffield
    South Yorkshire
    S10 2JF
  • National Hospital For Neurology & Neurosurgery - Queen Square
    Queen Square
    London
    Greater London
    WC1N 3BG
  • Fairfield General Hospital
    Rochdale Old Road
    Bury
    Lancashire
    BL9 7TD
  • Whiston Hospital
    Warrington Road
    Prescot
    Merseyside
    L35 5DR
  • Sunderland Royal Hospital
    Kayll Road
    Sunderland
    SR4 7TP
  • South Tyneside District Hospital
    Harton Lane
    South Shields
    NE34 0PL
  • Betsi Cadwaladr University Lhb
    Executive Offices, Ysbyty Gwynedd
    penrhosgarnedd
    Bangor
    Gwynedd
    LL57 2PW
  • Livewell Southwest
    Local Care Centre
    200 Mount Gould Road
    Plymouth
    Devon
    PL4 7PY
  • Leeds General Infirmary
    Great George Street
    Leeds
    West Yorkshire
    LS1 3EX
  • The Royal London Hospital
    Whitechapel
    London
    Greater London
    E1 1BB
  • Ysbyty Gwynedd
    Penrhosgarnedd
    Bangor
    Gwynedd
    LL57 2PW
  • Ysbyty Glan Clwyd
    Glan Clwyd Hospital
    rhuddlan Road
    bodelwyddan
    Rhyl
    Clwyd
    LL18 5UJ
  • Llandudno General Hospital Site
    Llandudno General Hospital
    Llandudno
    Gwynedd
    LL30 1LB
  • CHRISTCHURCH HOSPITAL
    RDZ05@2.16.840.1.113883.2.1.3.2.4.18.48
  • Worthing Hospital
    Lyndhurst Road
    Worthing
    West Sussex
    BN11 2DH
  • Central Middlesex Hospital
    Acton Lane
    London
    Greater London
    NW10 7NS
  • Royal Shrewsbury Hospital
    Mytton Oak Road
    Shrewsbury
    Shropshire
    SY3 8XQ
  • Wrexham Maelor Hospital
    Croesnewydd Road
    wrexham Technology Park
    Wrexham
    Clwyd
    LL13 7TD
  • Solent NHS Trust
    Solent NHS Trust Headquarters
    highpoint Venue
    bursledon Road
    Southampton
    SO19 8BR
  • Brampton Hospital
    Brampton War Memorial Hospital
    tree Road
    Brampton
    Cumbria
    CA8 1TX
  • Moseley Hall Hospital
    Alcester Road
    moseley
    Birmingham
    West Midlands
    B13 8JL
  • Penrith Hospital
    Bridge Lane
    Penrith
    Cumbria
    CA11 8HX
  • Andover War Memorial Hospital
    War Memorial Hospital
    charlton Road
    Andover
    Hampshire
    SP10 3LB
  • Norfolk Community Health And Care NHS Trust
    Norwich Community Hospital
    bowthorpe Road
    Norwich
    NR2 3TU
  • St Mary's Health Campus
    Milton Road
    Portsmouth
    Hampshire
    PO3 6AD
  • Western Community Hospital
    William Macleod Way
    Southampton
    Hampshire
    SO16 4XE
  • Kirkley Mill Health Centre
    Economy Road
    Lowestoft
    Suffolk
    NR33 0DR

Simona Jasaityte
ion.pdresearch@ucl.ac.uk


Prof Huw Morris
h.morris@ucl.ac.uk


Matilda Fenn
ion.pdresearch@ucl.ac.uk



The study is sponsored by University College London and funded by Medical Research Council (MRC) .




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for Trial ID: CPMS 18437

Last updated 25 April 2025

This page is to help you find out about a research study and if you may be able to take part

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