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Contact the study team using the details below to take part. If there are no contact details below please ask your doctor in the first instance.
Saakshi
Kakar
edgi@kcl.ac.uk
Dr
Gerome
Breen
edgi@kcl.ac.uk
Dr
Gerome
Breen
edgi@kcl.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
Behavioural syndromes associated with physiological disturbances and physical factors
This information is provided directly by researchers, and we recognise that it isn't always easy to understand. We are working with researchers to improve the accessibility of this information. In some summaries, you may come across links to external websites. These websites will have more information to help you better understand the study.
Eating Disorders including anorexia nervosa, bulimia nervosa and binge-eating disorder are common, affecting ~6% of the population with a substantial burden on healthcare and with considerable unmet medical needs (Ágh et al. 2016; Schaumberg et al. 2017). Scientific evidence indicates a strong genetic component (Duncan et al. 2017; Wade et al. 2013; Boraska et al. 2012; Thornton et al. 2011), and combined with environmental risks, such as maternal nutrition and early developmental stress (Raevuori et al. 2014), the result is a complex interaction of factors that produce EDs. This lack of knowledge has prevented the development of more effective treatments. The overarching aim of this resource is to set up a re-contactable resource on Eating Disorders’ (EDs) to facilitate investigation into the risk factors associated with EDs. Such studies are currently impossible due to lack of available samples.
Eating Disorders Genetics Initiative (EDGI) will be the world’s first comprehensive resource for eating disorders and will provide: (1) biological samples for studying the genetics (2) psychological and medical data, including neuropsychological, psychiatric conditions and medical comorbidities; and (3) data on family psychiatric and medical history. It will represent a resource of clinical measures linked to biological samples as part of the NIHR BioResource and the NIHR BioResource Centre Maudsley. The resource will enable studies on EDs by providing samples and biological data to the scientific community at minimal costs.
We will recruit 5000 participants with a lifetime occurrence of EDs who will be asked to provide a saliva sample and some additional psychiatric and medical health information. Furthermore, we will obtain consent for re-contacting participants and consent to link research data to medical records. We will also support and update members through regular updates of research progress and links to relevant websites and media.
Start dates may differ between countries and research sites. The research team are responsible for keeping the information up-to-date.
The recruitment start and end dates are as follows:
Observational type: Genetic epidemiology;
You can take part if:
You may not be able to take part if:
Individuals without capacity to provide informed consent Individuals under the age of 16 Individuals who do not have a current diagnosis or who do not meet the screening criteria for DSM-5 eating disorders.
Below are the locations for where you can take part in the trial. Please note that not all sites may be open.
Dr
Gerome
Breen
edgi@kcl.ac.uk
Saakshi
Kakar
edgi@kcl.ac.uk
Dr
Gerome
Breen
edgi@kcl.ac.uk
More information about this study, what is involved and how to take part can be found on the study website.
The study is sponsored by King's College London and funded by NIHR Evaluation, Trials and Studies Co-ordinating Centre (NETSCC); NIHR Maudsley Biomedical Research Centre; .
Your feedback is important to us. It will help us improve the quality of the study information on this site. Please answer both questions.
Read full details
for Trial ID: CPMS 41782
You can print or share the study information with your GP/healthcare provider or contact the research team directly.
