- Youtube link to video - this video is 2 minutes 18 seconds long
- Video description - Pemphigus, a rare blistering skin condition, currently has limited treatment options. Learn about the ADDRESS trial, a study exploring an injectable treatment. Hear from Dr. Rosie Vincent and participant Ron Rewbury about their experiences and why taking part in research is so vital.
Accessibility - visual-only features
The following features are present in this video to enhance the visual production. All essential information that is needed to understand the context of this video is available through the video's audio content or the descriptive transcript:
- Background music
- Video content of Ron, Rosie and a research nurse in the hospital
- Logos
Descriptive transcript
0:00 - Title frame
[Top of frame - Be Part of Research logo and NHS logo. Video footage of the outside of Bristol Royal Infirmary (a large teaching hospital) then outside of a treatment room within the hospital]
0:05 - Audio and visual
[Top left of frame - Be Part of Research logo. Rosie is shown talking to camera with ‘Dr Rosie Vincent, Dermatology Clinical Fellow’ written in the lower third of the screen]
ADDRESS is a trial which is designed to look at a skin condition called pemphigus which is a severe skin blistering disorder, which is quite rare, and there aren't that many treatments available for this condition. So there's a new treatment that's come out which is an injection.
0:21 - Audio and visual
[Footage of Ron, research participant, entering a hallway and being met by Rosie]
And in the trial we want to see whether this works well for this condition.
0:27 - Audio and visual
[Ron is shown talking to camera with ‘Ron Rewbury, Participant’ written in the lower third of the screen]
I decided to get involved with this study because I was quite poorly and I think that if I can help another person from the results of my study then that has got to be a bonus.
0:42 - Audio and visual
[Footage in Ron walking with a research nurse then Rosie is shown talking to camera]
When people enter the trial they're entered into a drug group or a placebo group and we don't know and the patient doesn't know which medication they get. So we follow them up for a number of weeks, and usually at weekly intervals, and we assess to see how they're doing and check their skin as well as do a full skin examination.
1:05 - Audio and visual
[Footage of Ron in an appointment with a research nurse then Ron is shown talking to camera]
On arrival at the BRI I've been given a cup of tea, for starters. Then the nurse, she'd been doing my regular tests: weight, height, bloods. And then I get this injection into the tummy, which is no problem whatsoever. It takes a minute and a half, job done, then I go home.
1:30 - Audio and visual
[Footage of Ron speaking with the research nurse. Rosie is talking]
And eventually, hopefully we'll be able to use it in the NHS if it's a successful treatment.
1:37 - Audio and visual
[Rosie is talking to camera]
From doing the ADDRESS trial I've really seen how positive an experience patients can have with getting involved in research and obviously we wouldn't be able to do the trial without them.
If patients want to get involved with research they can look on the Be Part of Research website and can register and look for trials in their area, for conditions that they may have.
1:56 - Audio and visual
[Ron is talking to camera]
My message to anybody volunteering, I would say go for it. Hopefully it might result in a cure for people of the future, maybe my own children.
2:10 - Closing frame
[Closing slide including:
- Top of frame - Be Part of Research logo and NHS logo
- Middle of frame - ‘Sign up today to improve the care and treatment of tomorrow.’
- Bottom of frame - bepartofresearch.uk]
