‘Taking part in asthma research: Elaine’s story’ - video transcript

  • Youtube link to video - this video is 2 minutes 13 seconds long
  • Video description - Elaine has brittle asthma, which currently has no cure. In this video, she speaks about her condition, her motivations for taking part in research and experiences of being involved. Since taking part in a trial into her condition, her symptoms such as breathlessness after a long walk have improved.  

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Descriptive transcript

0:00 - Title frame

[Footage of a burning candle and a cushion with the text ‘Mum, better known as taxi, alarm clock, chef, miracle worker, shoulder to cry on, bank account, secretary, role model, counsellor, personal motivator, cheerleader’]

0:04 - Audio and visual

[Elaine is sat on her sofa talking to camera]

Hi, my name's Elaine, and I've got brittle asthma, which I've had since I was 30. Brittle asthma is where it's uncontrolled. It doesn't matter what medication that you're on, there's no cure for it. And this is why I will go on to the trials and try anything, just to make myself better and help other people as well.

0:22 - Audio and visual

[Footage of Elaine opening a bag with a peak flow meter in (a peak flow meter is a small handheld device that you blow hard into and measures how fast you're able to breathe out)]

For me, it was a really easy decision to take part. If it's a cure for you, or some help, then I'm willing to do that and it might work for somebody else as well.

0:32 - Audio and visual

[Footage of Elaine setting up the peak flow meter next to her phone and blowing into it]

What I have to do is record my peak flows twice a day and I also have an injection which the staff at the hospital give me.

0:41 - Audio and visual

[Footage of Elaine walking towards the Bradford Clinical Research Facility (CRF) building and entering the building smiling]

I go once a month and they explain everything. I have to have lots of tests done first.

0:47 - Audio and visual

[Footage of Elaine talking to two members of staff at the CRF]

Obviously when you're going into a new trial you might have some reservations,  but the whole team, the doctors and nurses, are very helpful. They will allay any fears that you have. You can always ask them any questions at any time.

1:00 - Audio and visual

[A Senior Research Nurse, Kim, talks to camera] 

People getting involved in research won't just benefit that one person, you're going to benefit lots of people with that health condition as well.

1:06 - Audio and visual

[Footage of Elaine in check ups with nurses at the CRF. Kim continues to speak] 

People can become involved in lots of different types of research. So it might be something simple like a questionnaire, filling out a lifestyle diary, or maybe just a few samples. It might be a one off study. You come in, we might do a breathing test, or we might take a blood sample

from you, and that'll be it. But the information that's gathered, even from such a simple task, will not just benefit yourself, it's going to benefit a big cohort of individuals. So it's not just for yourself, it's for everybody else as well.

1:33 - Audio and visual

[Footage of Elaine making a cup of tea and of her talking to camera on her sofa. Elaine is speaking now]

Taking part in this trial has made me able to get to the end of the street now, where I wasn't able to walk very far. I don't get out of breath as quick. So these things have been a lot of the benefit for me. And you just feel wonderful that somebody else might just benefit, you know, it'd just be a lifeline for them, just to open up the world again for them. My benefit is it makes me happy to think that by doing this and taking part that I'm giving back to somebody else.

2:00 - Closing frame

[Closing slide including:

A different voice speaks]

Life changing treatments start with people like you.

Sign up at bepartofresearch.uk today and make a difference to the health and care of tomorrow.

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