- Youtube link to video - this video is 1 minute 46 seconds long
- Video description - Michelle has had lupus since her 20s, which has caused her symptoms of overwhelming fatigue, debilitating pain, and recurrent mouth ulcers. Now she's taking part in research into a new treatment for her condition.
Accessibility - visual-only features
The following features are present in this video to enhance the visual production. All essential information that is needed to understand the context of this video is available through the video's audio content or the descriptive transcript:
- Background music
- Video content of Michelle and her cat at her home
- Logos
Descriptive transcript
0:00 - Audio and video
[Music plays with footage around Michelle’s house including her furniture, paintings and cat]
0:05 - Audio and video
[Footage of Michelle sat in a chair speaking to the camera]
My name is Michelle. I was diagnosed with lupus probably around 30 years ago when I was 25. I've really witnessed the development of treatments. When I was diagnosed, there wasn't really any effective treatments.
0:24 - Audio and video
[Footage of Michelle reading a book]
A lot of the treatments had a lot of side effects. And also, you know, the side effects themselves are sometimes worse than the condition itself. So really seeing the progression, there's now new treatments coming on board. And, you know, I've really seen that people are able to live with lupus better.
0:40 - Audio and video
[Footage of Michelle sat in a chair speaking to the camera, drinking a hot drink from a mug while speaking to a friend and a close up shot of her cat]
So I really wanted to be part of that. Well, for this, for the study, the main thing I have to do is obviously take the medication and then I have a once a month visit at the hospital. That's very straightforward. That takes about 30 minutes.
0:56 - Audio and video
[Footage of Michelle using her laptop]
The research team are really good. They work around my schedule. Black and Asian women often have worst outcomes with lupus, so it's really important that we're part of the development of new treatments that can improve the outcomes.
1:09 - Audio and video
[Footage of Michelle reading a cookbook]
I would say the main thing is to not be afraid. You're well taken care of. My research team, the doctors, nurses look after you. You can always ask questions. Your, you know, you're monitored very carefully. The risks are tiny and the benefits can be huge.
1:27 - Audio and video
[Footage of Michelle playing with her cat]
For me, it's really an exciting time in terms of research, and I'm really hopeful that for the future we're going to have some really good treatments. And that's why taking part in this kind of research is so important.
1:40 - Closing frame
[Closing slide including:
Top of frame - Be Part of Research logo and NHS logo
Middle of frame - ‘Sign up today to improve the care and treatment of tomorrow.’
Bottom of frame - bepartofresearch.uk]
